When my count is low my wife says my body temperature drops

[trev1679]

my body feel very cold (especially on my lower back apparently) anyone else experience this?

[catt1]

I feel very cold to the point where I shiver when my counts in the mid teens or lower is more a general all over coldness but when my platelets are dropping which they do very quickly I do get lower back pain and someone did tell me (another I.t.p sufferer so I am not sure if there is any medical evidence to this as she had the same symptom) was due to the fact the bone marrow is produced from the lower spine.

[sailor]

Hi Trev. I suspect the medics would not agree with you or your wife, but many ITP sufferers do feel the cold and I would certainly agree. They now accept fatigue so maybe they will accept temperature. My count is usually around 10 and has been for many years. I always feel the cold and were my wife removes clothes to cool down, I put them on. We are opposites on this and causes some amusement among our friends. As to the bone marrow production. I am not sure but suspect the platelets are produced in bone marrow for all bones. Maybe the doctor could answer this.

I am afraid another layer is all you can do and hot drinks laced with rum or scotch if your not driving!!!.

[Juliah]

Hi, I'm sitting here shivering answering this lol. I feel a minimal drop in temperature most people don't feel. Can't go swimming because the pools are too cold. I actually feel pain and my skin hurts with the cold. Was diagnosed 5yrs ago & been in remission for the last 2 but felt the cold much worse since the Itp started.

Keep warm

Julia

[virginiabranscom]

Interesting! I was first diagnosed with ITP in 2000, but I suspect I had it for a decade before that...Splenectomy in 2004, counts over 50 for 7 years. Then, this past year, a downward spiral, and now have been on steroids for 2+ months, counts lowering drastically while tapering. BUT — One thing I've noticed is that while on the prednisone I am NOT chronically cold and shivering, which I've been, summer and winter, for decades. So, I do feel that body temperature is definitely connected with ITP, at least for some of us.

[Morgan]

Hi Trev, my count is usually around 30 but I am the only one in my zumba class who is wearing gloves - my hands go numb in winter despite the rest of me being very hot ! I have only noticed this since being diagnosed 10 years ago - our thinning blood I guess.

[AnthonyHeard Administrator ITP Support Association]

Hello Trev , it is interesting that you raise the question of feeling the cold and ITP. I actually set this question in November as our monthly poll and the overwhelming majority of those who responded agreed with you that feeling the cold did seem to be something that most ITP sufferers have in common. Over 80 per cent said YES.......See itpsupport.healthunlocked.c... .

I will raise the issue at the ITP Support Association Annual Convention on April 20th when we have a number of the leading specialists in ITP attending. It is, at least in my opinion a bit like the link between ITP and fatigue, which was denied by all the doctors and medical profession until research undertaken recently and funded by the ITP Sup Ass proved that it was a symptom after all.

[toolski]

My girlfriend says i'm frozen,my feet and hands etc are always cold while she's nice n toasty ,,so is this another side effect from bleedin ITP??