Rare Disease Day Royal Holloway University Event

[AnthonyHeard]

Images form the Rare Disease Day event at Royal Holloway University held on 29th February.

youtube.com/watch?v=JdFtfGw...(Not working as expected?)

This was the largest event in the UK to mark Rare Disease Day and we are grateful to all those at the RHU for making the event a tremendous success. we will be attending again next year but on the 28th Feb obviously !!!!!!

[AnthonyHeard Administrator ITP Support Association]

I attended the event myself and it was a really inspiring, thought provoking day. An event which is well worth supporting and putting into your diaries for next year but make sure you put it in for February 28th as of course next year will not be a leap year !!!!!!

[NickyD]

Was there an ITP Stand?

[AnthonyHeard Administrator ITP Support Association]

We did not have an ITP stand at the event this year Nicky. To be honest it is only the second year that the event has been held and I wanted to go along to see what we could expect from it before we run any kind of display stand. Having now seen what the event is all about we will be applying to the organisers to set up an ITP Support Association stand next year. It is a terrific event to be involved with because it really is a great platform from which to broadcast awareness. It is not a fundraising event at all but for awareness it is ideal. Will keep folk advised of what we will be doing for next year as and when we get confirmation from the organisers.