I have CLL/SLL and secondary ITP. ITP is a recognised complication of CLL/SLL. Where ITP occurs, platelets are not falling due to marrow infiltration by lymphocytes, but rather due to immune disregulation. The reason why CLL/SLL can have this effect and cause secondary ITP is not yet entirely understood.
As far as I know there is no known association between childhood idiopathic thrombocytopenia and SLL/CLL (which as you’ll well know is a disease of adults and mostly older adults, although some us get it younger). So your daughter, on my understanding (I’ve read a lot on the subject but I’m no blood doctor), is not more likely to get CLL/SLL because of her childhood ITP.
You probably know that the children of CLL/SLL patients do have a slightly increased risk of CLL/SLL due to the familial link, but this is statistically still a really small risk of my kids getting CLL/SLL, and so I don’t fret about it.
No, I did not know about the familial link of CLL/SLL.
Until I came to this site, I did not know that some of us also get ITP. I'm on other leukemia sites, too, so I'm surprised that this is my first exposure to this information.
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