What causes ITP..?: Well this is my 3rd... - ITP Support Assoc...

ITP Support Association

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What causes ITP..?

Johnsonmartinp profile image
7 Replies

Well this is my 3rd ‘detected’ occurance of ITP in about 12 years. The prior two Rituximab has seen my platelets eventually stabilize for 3 to 4 years. I try to live a health life and have stopped drinking alcohol, coffee, tea and any sugar supplements... BUT air keeps happening! I commute a long distance, work long hours, have a challenging job and my sleep is not great. Could it be burnout that the body has enough???? What are you thoughts?

One more week to go and then my latest Rituximab treatment will be over and then fingers crossed those platelets increase and stabilize :)

Regards, Martin.

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Johnsonmartinp
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7 Replies
sharroN42 profile image
sharroN42

Good luck. Let us know how it goes.🍀🍀🍀

hannaITP profile image
hannaITP

Good luck but try to slow down a bit, can not get water from a rock, you body needs recovery time and since sleeping is never great with ITP you are in a dangerous cycle of running yourself down to low platelets count.

Johnsonmartinp profile image
Johnsonmartinp in reply tohannaITP

Thank you Hannah.. I need to shift the weight I have gained though as this I feel is also a health concern.. I am riding my bike and go as far as I can and then stop! Fingers crossed :)

Roxanned profile image
Roxanned

I wish we knew what caused itp? Maybe an initial infection perhaps? And a history of auto immune diseases in the body.

Johnsonmartinp profile image
Johnsonmartinp in reply toRoxanned

I feel something must trigger it... who knows eh...!

technogeek profile image
technogeek

I have been asking the same question and have studied it since 2015. My hemotologist tells me it's autoimmune and my platelets are being attacked by my immune antibodies. Though there are many forms of thrombocytopenea, this explanation accounts for one such cause. I also recall thrombocytopenea can appear with lupus, ms and other diseases, I have learned these diseases too are caused by autoimmune conditions. And following doctor Tom O'bryan, I learned that there are many forms of gluten sensitivity most of which do not show symptoms but work at the body for decades before you see a manifestation of disease symptoms and that is often too late. Learn more from Dr. Tom O'bryan's many you tube videos.

Johnsonmartinp profile image
Johnsonmartinp in reply totechnogeek

I will check out the docs work ;)

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