ITP Support Association
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Lipomas

Random question:

Has anyone had a lot of lipomas post diagnosis of ITP or post splenectomy? I have recently started getting what I thought were swollen lymph nodes on my chest, shoulders and arms, but my GP seems to think they are lipomas. Just wondering if any one else had this happen.

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Yes I have one on my shoulder and in my mouth and just recently had one removed from my bladder

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Thanks. My GP doesn't think it's indicative of anything, but I'm like you know I wasn't lumpy before I started this odyssey. But good golly, why I am all of a sudden getting so lumpy?

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One of the most negative effectsof spleenectomy is the irregular balancing of fluids in our body hence, even if my doctor advises me to think several twice to have my spleen remove (suspect - could be one of the causes kf ITP) and with a ratio of 20-30%% up of platelet, I did not accede. This is aside from weakening our body system (if spleen is to be removed).

So far, feom 1500 count since discovery of my ITP, it is now in the 100k series. I am taking Nplate (Romiplastin) by the way.

Regards,

John

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What is lapomis? I doubt that one person in 1000 would know.

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Fatty cells that form a lump. I’ve had at least 50 taken out and they just regrow. Depending on where they are located the can hurt. Near a joint is painful. Heredity is a link to getting them. Many people have them. Mine usually grow in a place that has had trauma or joints that have arthritis.

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I was diagnosed with ITP in early 1990’s started treatment in 2009, no splenectomy on Nplate since 2010 doing well, no lipomas, As nurse I tell pations to avoid GP’s who tell you “I think they are lipomas”, if he/she doesn’t know he should refer you to a Hematologist, who is the appropriate doctor to be treating your ITP. FYI this site has great educational materials, the more you know about our disease the better the treatment you will receive:)

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Actually see a hematologist and get weekly bloodwork. Thankfully, I have an appt with her next week and plan on bringing them up. I too was a little concerned with him so quickly dismissing it considering I have had very sketchy blood work for a year.

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Quick q- in the UK is correct that you don’t get to see the haematologist unless you referred by the GP? I’m still waiting for the call from the hospital. I do private medical insurance through work . How do I get to see a haematologist sooner. It’s a total mess since I changed address and moved to Wandsworth. Do you think I can call my previous haematologist that’s based at another hospital ?

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Not sure. I'm in the states and a gp referred me thankfully, but I would imagine you could get a referral from your previous doc.

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