Hi everyone... i read these blog posts with awe and inspiration... and compassion. I try to compare my situations with others here, because clearly many of you have been dealing with ITP for some time!
I have gradually decreased my platelet count to the low numbers that scare the docs ( as mine had lost a patient due to brain hemorrhaging) but have held steady in not taking steroids. I am more afraid of them than my current illness.
I was wondering how many of you get the dizziness, brain fog, heart racing, chest pains that I get even without the steroids?
I have been faithfully seeing an acupuncturist to work on my over all body... and doing herbal medicine. which helps a tiny bit. ( the acupuncture helps with head aches and fatigue)
But as I sit here in my hotel room in Miami, getting ready to head back to LA... I am feeling melancholy because I have a high pressure job and just dont feel good.
Its been quite a while since I woke up and felt GOOD!
anyway "pity party of one" is off to LA... thanks for listening.