Today is November 13: Today is November 13. Today... - ICUsteps

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Today is November 13

Crazydoglady87 profile image
8 Replies

Today is November 13. Today marks exactly one year since my father was admitted to the hospital for what we would later find out was septic shock.

At 10:24am, as I was attempting to walk my dad down the stairs to take him to the ER because he did not seem well, my dad stopped breathing. I laid him down on the stairs as he gasped for air with eyes wide open while I yelled and cried to the 911 operator to get an ambulance to the house because my dad was dying. The paramedics arrived soon after and picked up what looked to be my lifeless father, and took him to the hospital. COVID was controlling our lives then and no vaccine was available so they told me I could not go to the hospital. I called my brother in shock, panic and fear and we drove to the hospital where we waited outside of the ER for 2 hours not knowing if our dad was alive or dead. All we got was “it seems like they’re still working on him so he’s probably alive”. 2 hours later, we are finally allowed inside to speak to a doctor who tells us our dad is extremely sick and we may need to make some big decisions in the next few hours. All of our dad’s organs were failing. He was on a vent. He couldn’t even try to breathe on his own. What happened? He only had a stomachache! Our dad couldn’t be dying. But he was.

The next 2 months were full of ups and downs. He couldn’t get off that vent. He needed a trach. He didn’t tolerate a reduction in sedation. His liver was failing. His kidney levels were worsening. I needed to speak with palliative care. I couldn’t tell my mom and brother the truth. They couldn’t handle it. I needed to do it all. And I needed to do it alone. They allowed me to visit with my comatose father. I broke down and begged him to come back. He couldn’t leave us. We wouldn’t survive.

The next day, he tolerated a reduction in his sedation. They reduced the settings on his ventilator. So far so good. Two days later…the sedation was off. Ventilator was only assisting. Will he wake up? Hours later…I get a FaceTime call from the hospital. My father is awake. He cannot speak. Thank you, trach. But he can mouth a few words! “Hey mama. Have you eaten yet?” Is what he first says to me. My dad is awake!! My dad is ALIVE!

He eventually leaves the hospital on January 20. He cannot walk but he can now speak. He is weak but he’s okay. Nurses, physical therapists all visit our home and become family for the next several weeks until one day, all of a sudden, dad is back. It took months but it also seemed so fast.

Today, I’d say dad is back to 90% of his old self. He’s a little slower. A little quieter. A little needier. But he’s dad. And he’s alive. I’m a little controlling. A little demanding. A little tough on him and his medical team. But he’s alive. And doing extremely well!

I cannot thank this community enough for providing me with support and HOPE when my family and I needed it the most.

I write this post to not only thank you all but to also provide some of the hope that I was so desperately google searching for one year ago. Believe in modern medicine. Believe in a higher power. Believe in your loved one. Never give up. Never give up hope. Science and God together…they work miracles.

Prayers for everyone going through a difficult time. I hold you all in my heart.

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Crazydoglady87 profile image
Crazydoglady87
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8 Replies
FamilyHistorian profile image
FamilyHistorian

Anniversaries are a very important and emotional time. Whether it’s related to first time, or coming out or missed days including birthdays and Christmas. For some patients it’s about events that you know nothing about. And you never know what will trigger the memory

Crazydoglady87 profile image
Crazydoglady87 in reply to FamilyHistorian

Yes! They are dates that you will never forget. And it’s also nice to remember and see the progress. A wonderful way to be thankful for our many blessings now.

Grant_za profile image
Grant_za

Wow !!

That was so well written.

You have managed to encapsulate the ride from hell many here have been on, and others yet to face.

I'm certain many will be able to draw some inspiration from your experience when all seems lost and there is little hope left.

Without hope, we have nothing.

Crazydoglady87 profile image
Crazydoglady87 in reply to Grant_za

So true! Hope is the last thing we should ever lose.

I truly hope this post finds someone who needs that reassurance that recovery, while a long and daunting process, is possible. I remember that feeling of helplessness. Of confusion. I hope this post provides some light to those who need it.

Thank you.

Copse77 profile image
Copse77

It is such an inspiring family story you shared to provide hope to others. Like you I found this website and some of the people to be a reliable source of information, advice and support when our family went through the most traumatic time almost losing my younger brother. Now it’s almost 4 years in December. I am a scientist and I needed to find reliable, trusted information. I also found shared experiences of other patients and families so helpful.

Crazydoglady87 profile image
Crazydoglady87 in reply to Copse77

I’m so glad you and your family have your brother back! It’s a terrifying experience.

Yes! Everything this site provides was so helpful. I took great comfort in reading about other people’s experiences and how they or their loved one overcame those difficult times. I am hoping our story can also add comfort to those now and in the future who will need it most.

leafety profile image
leafety

Reading this has given me hope that my partner can be okay, he has been in for 11 days on ventilation due to sepsis and I have been so scared but this has given me hope that there may be improvements. Thankyou x

Angelfran123 profile image
Angelfran123

I really needed to read this today. Thank you so much.

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