Vegetative state brotheršŸ˜­: My brother is the... - ICUsteps

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Vegetative state brotheršŸ˜­

BroSis profile image
BroSis
ā€¢6 Replies

My brother is the closest person to my heart. He had a terrible traumatic brain injury due to accident with a 10 tonne lorry. Even though there's no outer injuries there's serious terrible inner injuries and the doctors didn't have hope on him and eventually just gave him less tha 24 hours to survive and even did not provide him oxygen on time causes him to have aneroxia and minor stroke. Its been almost 4 years till now and he manged to survive till this moment.. I would literally thank to god but its like not a thing that I can accept.. I felt like heartbroken, I couldn't even see him lying like that with his feeding tube and sometimes he have eye syncronization, he smiles and cry sometimes, he tried to lift up his head and move his hands and leg faster ..my family is really supportive. We take care of him, bring to hospitals for frequent checkups, we tried different tariditional and modern treatments and ask advice even to brain surgeons and doctors. I still now hope that my brother could really wake up and get his conscious.. Although I can witness some improvements as I am always with him, the reports of the doctors is not giving hope actually.. They told that nothing is improved and his brain had shrink and probably he would spent the rest of his life in vegetative state.. I just could not accept it.. I am not able to witness him like that as he is still young in his 20s. I'm so sad eventually each day I almost cry..but when I talk to him, play music to him, recall some memories I would never cry in front of him as it might make him even weaker. I really hope the god atleast have mercy on him and get him to get conciouss..... I know there are many people out there who suffer the same situation.. I really understand and I pray each and everyone of the coma and vegetative state patients regain conscious and their family regain the happiness back...

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BroSis profile image
BroSis
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Rhyl1 profile image
Rhyl1PartnerModeratorICUsteps

If you are in the U.K. you might be able to get some advice and support from a support charity for persistent vegetative state (PVS) patients and families braininjurygroup.co.uk/serv...

Their aim is to raise awareness of PVS and provide somewhere to share stories and support with others who are in the same situation and understand how it feels.

BroSis profile image
BroSisā€¢ in reply toRhyl1

Thank you so much...

Copse77 profile image
Copse77

I am so sorry for you and your brother and your family. I hope the informational support group that Rhyl1 sent you can help provide support to you and your family. You are clearly a loving and supportive family. I hope your brother is able to make some improvements and in being able to communicate with you and your family. From one sister to another with best wishes.

BroSis profile image
BroSisā€¢ in reply toCopse77

Thank you so much for your hopes and wishes.. I really do hope so.. Thank you for supportive words sis..really appreciate it.. šŸ™‚

TaIaV profile image
TaIaV

I am heartbroken reading your post. It must have been very hard to believe at first. Now, four years later, you indicate that you find it hard to accept it, which is understandable.

Let me mention one thing in case it is helpful .

-- Sometimes we stay mired in the sadness about an illness because it is so sad moment to moment to moment.-- in other words, our sadness gets re-triggered through seeing our loved one suffer.

-- Sometimes, we keep from accepting the illness because it seems like accepting it would mean giving up on the hope that things might change. It is possible to do both: You may be able to gain peace and transmit that peace to your brother more fully by accepting the current state, while still hoping fervently for something to change.

I hope that this does not sound insensitive to your situation. I just know that subtle shifts in how we perceive troubles can make a huge difference. I faced this when my mother was diagnosed with incurable cancer. I can imagine you seeing your beautiful young brother and continually thinking "How could this happen?" and

"Why does it have to be like this?" Perhaps you can also tell yourself "This is my beautiful brother. What happened happened. His wonderful self is still here and we are caring for him lovingly and well." Since you seem to be a person of faith, you might tell yourself "God is merciful. That mercy spared his life and put his care in our hands. God's mercy may or may not change his capabilities. Our prayers may or may not be answered directly. We accept each situation and put our energy into making him and our family strong and loving".

He is so fortunate that he has you and the rest of the family. Do take care of your own emotional and physical health. I wish you peace in any case, and pray for the best for your brother.

BroSis profile image
BroSisā€¢ in reply toTaIaV

Thank you so much for the advise and wishes sis/bro... I had tears while reading your message... šŸ˜”I'm so sorry for your mother.. Hope everything is well till this moment.... Still have faith and believe and hoping for some miracles to happen.. Let's see and let the time determines ... šŸ™‚Really thank you veryyy much.. May God bless you bro/sis...

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