day 4 off sedation snd still not responding - ICUsteps

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day 4 off sedation snd still not responding

mutley13
mutley13

day 4 off sedation and still not responding at all ......... should there be some response by now ??? ☹️

20 Replies
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Everyone is different - there is no set rule. Trying to hear the balance summing up of your loved one must be very hard, it took me 11 days to wake - I was responsive

mutley13
mutley13 in reply to Sepsur

Thanks for reply it’s so hard waiting and not knowing i would of thought there would of been something by now 😔

The beginning of this guide gives you a pretty good idea of what to expect and what you can do that is positive.

icusteps.org/assets/files/t...

mutley13
mutley13 in reply to Sepsur

this is great many thanks for your help 🙏🏻

I’m sorry I can’t answer your question. But the body is a marvellous thing and if you have an underlying condition it knows it has to make adjustments and come round when it is ready. It took me ages to come round properly.

As Sepsur says everyone is different. It is very hard I know but it was weeks before my brother became fully conscious. Thankfully he doesn’t remember much of it. Try not to worry. It can take sometime as everyone responds individually to sedation and depending on their illness and how it affects their recovery. Stay strong. .

mutley13
mutley13 in reply to Copse77

Thanks for replies we found out today there are no responses at all to either side of brain and now need to discuss palliative care . feel numb and utterly broken 💔

Copse77
Copse77 in reply to mutley13

I am so sorry you have had such devastating news.

mutley13
mutley13 in reply to Copse77

thanks for your kindness i just can’t get my head round it all tbh

Sepsur
Sepsur in reply to mutley13

I’m so sorry - that is awful for you 8 your family

Ferham
Ferham in reply to mutley13

I'm so sorry for your devastating news. xx

It took me a week to wake up.

I’m so so sorry to hear this heartbreaking news, I am sending you and your family lots of virtual hugs and love right now xxxxxx

So sorry your going through this , it’s just heartbreaking please stay strong and don’t give up hope , sending you lots of love xxx

mutley13 how are you ? How is your family member doing ? You have been on my mind Xxxx

mutley13
mutley13 in reply to Abstract7

hi thanks for your kind thoughts they took him off ventilator sunday told us the chances of recovery are none existent and if he did recover by some miracle he would just be in vegetative state - my daughter who is only 16 had to go and say her goodbyes on sunday night 💔 my youngest is too young to go - he is still breathing by himself but still totally unresponsive and that now it’s just a matter of time before he passes away - it feels wrong when he is breathing and his heart beating i can’t get my head round it . still praying for a miracle 🙏🏻

This is absolutely heartbreaking to hear and I am so so sorry you are all going through this. Please don’t lose hope there is still time for a miracle, and believe me miracles do happen !!!! I have been hoping and praying that things get better for you, I’m so sad to hear this, your poor children. It is so cruel what is happening to you all 💔 I feel for you so much I really do and if you ever want to talk I am all ears I am a mum myself and trying to hold it together is so hard , god knows how you are coping right now. I will not stop hoping and praying for a miracle. ❤️❤️❤️❤️❤️❤️

mutley13
mutley13 in reply to Abstract7

thanks for much for your kindness it’s beyond surreal if i’m honest every day just blends into one it’s hard to comprehend this is actually reality ...... life seems very cruel for a lot of people atm and i really don’t understand why 😞

I know how it feels you just wish you would wake up from this nightmare, me and my family have been through so much pain with my dad he is still in icu and it’s a miracle he is still here so please don’t lose hope. I have read so many stories on miracles reading them helped us get through. You really will all be in my thoughts and prayers ❤️❤️

mutley13
mutley13 in reply to Abstract7

many thanks it’s a comfort to know people are praying etc Im trying to cling onto the tiny bit of hope left 🙏🏻

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