I posted a week ago about my dad having organ failure and pneumonia. Dad started to get better and we were told he was over worst of it. They were ready to put trachea in next day when he has developed ventilation acquired pneumonia and took a massive turn for worse. Now he's too ill to put trachea in and they've said if he can't improve enough in 48 hours they can't do anything else as tubes been in too long. Does anyone have experience of this and able to tell me what to expect?? I'm so scared.

9 Replies

  • I'm so sorry to hear what you and your Family are going through!

    First of all, there is no way that the tube has been in too long so that they can't do a Tracheostomy.

    I am writing this with more than 15 years Intensive Care nursing experience.

    You should also stop taking everything for "FACE VALUE" the Intensive Care team is telling you. You need to get some leverage, some tools and strategies to start managing the Intensive Care team, because otherwise they will manage you.

    They may tell you that they can't do a Tracheostomy because they feel that continuing treatment on your Dad would take up too many of their resources.

    They may also currently experience a high demand on their ICU beds and therefore they have Patients waiting and therefore competing for beds.

    Again, you need to start developing strategies to pro-actively manage the ICU team and you may want to question everything they are telling you.

    Everything they are telling you is often a result of what's happening "BEHIND THE SCENES" in Intensive Care.

    Here are links to a couple of articles that may shed more light on this

    "Why decision making in Intensive Care GOES WAY BEYOND your critically ill loved one’s DIAGNOSIS AND PROGNOSIS!"

    "The ELEPHANT IN THE ROOM or HOW THE INTENSIVE CARE TEAM IS MAKING DECISIONS whilst your loved one is critically ill in Intensive Care!"

    I hope that helps!

  • I take it that he has a tube in the mouth? from what I understand that even if the tube is though the trachi it can bring on this condition. I know that does not help I had the trachi in for 25 days and on an oscillator for 10 days this in fact saved my life but I am afraid I now have RLD as a result.

    I truly feel for you! As the person on the bed I had no idea what I looked like from your point of view until I saw the photo the ICU team took once I was discharged. I was in ICU for 32 days.

    I hope it all works out soon for you all.

    Be Well

  • Yeah it's through his mouth its been in for 11 days now xx

  • Yeah it's been in his mouth for 11 days xx

  • Hi Kerrymolloy,

    I'm sorry to hear your dad has taken a turn for the worse and the distress it most be causing you and your family.

    I went through a similar thing to your dad nearly 4 years ago, I had double pneumonia, severe sepsis and multiple organ failure complicated with ARDS (acute respiratory distress syndrome), my wife was told nearly everyday they would try and do a tracheotomy the next day but I was so critically ill they had to wait 19 days, she was never told they would have to give up, even when my left lung and 2/3 of my right lung had filled with fluid, one of the consultants told her, "all time time I still had some lung to work with they would never give up" I spent 3 months in ICU and thanks to the amazing doctors and nurses that work in ICU at the Conquest Hospital in Hastings I'm still here enjoying my second chance of life.

    My wife described it as being on the the most frightening time of her life with so many ups and downs fearing the nightmare would never end but would never give up hope, my advice would be stay positive and question everything the doctors tell you, they have a duty to do all they can for your dad regardless of time and cost.

    My thoughts are with you and wish your dad a full recovery.

  • Thank you I needed to hear that xxx

  • Anjan

  • For Friz,Thank you so much for your frank and honest comments re CCU,your are a true breath of fresh air.

    Decisions made by consultants are not always correct,and being questioned by relatives can cause problems ,ie not agreeing with DNAR ,this happened to us ,and I had my husbands DNAR rescinded,many people are unaware you can do this .18 months later he is at the moment out in the garden weeding !

    Cant thank you enough for being so commited to your role.

  • They told my wife twice I was not going to survive the night i am still here.

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