Bad day, I ache from head to foot, he... - Hughes Syndrome A...

Hughes Syndrome APS Forum

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Bad day, I ache from head to foot, headache, tired & very tearful. My words are muddled & keep forgetting things !!! feel really low,

smellyfootsies profile image
6 Replies

feel really low, I am on warfarin for a pre existing heart problem for the last 13 years, paracetomal do not help aches, can anyone recommend any thing.feel really low, I am on warfarin for a pre existing heart problem for the last 13 years, paracetomal do not help aches, can anyone recommend any thing.

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smellyfootsies
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Manofmendip profile image
Manofmendip

Hi Sue

What is your target INR?

Dave

smellyfootsies profile image
smellyfootsies

Hi dave, approx 2.65

Sue x x

Salty profile image
Salty

Hi Sue,

Your symptoms of muddled words and forgetfulness may improve with a higher INR (eg 3.5-4) and for some plaquenil helps with the aches and pains. You might discuss these possibilities with your physician. See the poll on this website regarding best INR for symptom relief.

MaryF profile image
MaryFAdministrator

Hi there, sorry you feel bad, and yes to the advice above re INR and Plaquenil. You probably need a little bit of fine tuning with your consultant. Again papers available re ideal INR. Mary F x

daisyd profile image
daisyd

Apart from all the above, I was put on antidepressants, I think that the Hughes also effected that part of my brain, it's not for everyone but it stopped me having terrible thoughts and I am still here to prove it

Xx

smellyfootsies profile image
smellyfootsies

Thank u all i will speak to my consultant.... Just want go feel nornal.... X x

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