I have hughs syndrome newly diagnosed.I am in so much pain its a very strange pain like pressure,burning,pin and needles,sharp and stabbing.

[teresalouisa]

Could I also have MS I have tremors?This has gotten worse over the last 8 years or so.no flare ups as far as these symtoms comeing and going just slowly getting worse.

[GinaD]

Are you on thinners? And if so, for how long? It may take some time for the blood thinners to flush out all the sludgey blood.

[MaryF Administrator]

Hi there, an awful lot of people have an improvement in symptoms when their blood is thinned to the correct level. Also hopefully your specialist can check for other conditions as well, as sometimes there can be an overlap with other autoimmune conditions. Please let us know where you are so people on here can advise you regarding the best medical advise close to you. Mary F x

[teresalouisa in reply to MaryF]

Also I am really uncertain about blood thinners if I have this clotting problem how come when I bleed from a cut my blood already seems to thin.Meaning its very hard for me to get a cut to stop bleeding.

[teresalouisa]

Thanks for responding. Right now i am on asprin and predisone I am awaiting approvel for an EKG and more labwork that was ordered by the hemotoligist who I have not seen yet because he wants my labwork done before the appt.Is it possible to have MS and hughs syndrome the strange thing is they are all going by my blood test results while I am trying to tell them that I have a lot of neurological symptoms.

[dutchess in reply to teresalouisa]

i was diagnosed with APS 7 years ago , was on warfarin for 7 years and was active with not too many problems . Since coming off warfarin and going onto aspirin i have the same symptoms as you . constant pins and needles in arms and fingers , lack of co ordination at times and pain , and tremors . so can totally relate to you . x

[teresalouisa]

Thank you for the warm welcome.