Hi Mary and all who have been so informative. We have finally got a referral to see Prof Beverley Hunt in January for my Granddaughter, thanks again for all your help.
Referral: Hi Mary and all who have been... - Hughes Syndrome A...
Referral
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MaryFAdministrator
So pleased for you, take a list of bullet points of all the medical history from birth onwards, and questions you might forget to ask, and let us know you you get on, Well done for the big hard push! Mary F x
No thanks to you cos I wouldnt have known to do any of these things, but am going all prepared now, thanks again Mary x
That is brilliant news. Pleased for you.
Thanks Lissylou, we are too x
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