HI fellow Hughes Syndrome Ppl, I was diagnosed with APS after venous clots developed in my calf during the final weeks of my pregnancy. No history prior to this event but now with two consequtive and positive tests ACL-IgG moderate positive = 23.
The clots are now resolved and its been a few months - In your experience would you think i should be on Anti coag long term? My GP admitted that he knows little about the syndrome and has referred me to a Haematologist in perth Western Australia, but has not put me on any further Anticoagulant therapy as i had transient factors involved and my INR is 0.9 and he doesnt think i need to.
Also i have had persistent pain in the leg affected, aching, sore, stiff, genrally tender - is this typical of APS?
Appreciate your thoughts!