Was made aware of this article recently..might be of interest?

[lloydyuk]

medicalnewstoday.com/articl...

[MaryF Administrator]

Thank you, a good clear and informative read. I also love this one: the-rheumatologist.org/arti...

MaryF

[lloydyuk in reply to MaryF]

Thanks Mary, I just read the whole article. So interesting and easy to follow too.

[Wittycjt in reply to MaryF]

Read whole article, this is a keeper. I have been asking for this, thanks for putting this on, Cindy in NJ edgewater100

[Hughes-Comrade in reply to MaryF]

Awesome article, thank you for sharing.

[charlieab]

Very informative, especially the bit about possible triggers.

[Wittycjt]

Good read. Simple and useful, thanks, Cindy

[Wittycjt in reply to Wittycjt]

edgewater100 theses are also very recent

[Hughes-Comrade]

Great link and info. Thank you!

[Fra22-57]

Excellent reading

[KellyInTexas Administrator]

Thank you! I had ,” probable caps” at 18 months of age in association with my immune thrombocytopenia purpura. More likely classified as M-APS.

Was not expected to live for about three weeks.

I’m now 48.5, so Hughes Syndrome was unknown then. My doctors now theorize the massive steroids for the ITP helped turn it around.

Thanks for posting. My son was just diagnosed a few months ago also . ( at age 15) so very useful info.

So glad you are ok.

[lloydyuk in reply to KellyInTexas]

Now there’s a story! Thank you

[KellyInTexas Administrator in reply to lloydyuk]

Dallas/ Ft.Worth. I was placed in a pediatric cancer ward- leukemia. They did know it was thrombocytopenia, but back then the I stood for idiopathic, not immune.

[lloydyuk in reply to KellyInTexas]

When I was first diagnosed in 1995 after a hospital admission...TIA i now realise my treatment commenced based on a ‘hunch’ from the consultant immunologist.

[KellyInTexas Administrator in reply to lloydyuk]

Did you already have a diagnosis of APS? If not, then that consultant immunologist needs the Nobel prize for being the most intiitive immunologist on Earth. Well, either way. Very in tune physician. Who is this physician? Based in... London?

[lloydyuk in reply to KellyInTexas]

No they didn’t know. Were leaning towards lupus initially...was in Bristol (south west U.K.) he’s probably retired or dead by now!! Was 22 years ago