Please help me find a doctor in the Toronto area-my symptoms are worsening and my family doctor can't help me. Thank you for helping.

[john1969]

[Skyllark]

where are you in toronto?

[john1969 in reply to Skyllark]

I'm in North York.

Skyllark, Doug and PterVee, I can't thank You all enough!

I will start on your suggestions this week.

Really, I thank you so much!!

John1969

[Skyllark]

Toronto West would be a start - they have docs that work on Lupus.. they are your best bet, my wife works with Kingston General. but when they are concerned there they always communicate with Toronto western. In Hamilton we have been refered to a hematologist Dr. Crothers. what symtoms are getting worse?

[john1969 in reply to Skyllark]

My left arm looses power and mobility almost daily and it feels like someone is pulling on it and it can be very painful. My left side becomes numb - I have rashes under my arm on my chest. My memory is getting worse - I can't remember many words and often have difficulty putting together a complete sentence. I feel like I'm out of it - spacey, don't know where I am or what I'm doing.I've had a couple of TIAs and have had incredible migraines and headaches. Please, Please tell me how do I get an appointment to see one of these doctors who can help me??? My family doctor is useless - I need help and don't know where to go?????? or how to get it?? Thank you for your help and support.

[Doug]

Crowther's group at McMaster is very good, although some of his recent published work has received criticism - recommending a lower INR than many would support. None the less, that group would be where I'd go. d

[Skyllark in reply to Doug]

what work of Crowthers was criticized? we met with him in july... He seemed purly unprepared with our apointment... with the referal to him from our doc in Kingston... our doc sent Jenni's medical history and totaly seemed unaware of her condision.. so we had to start from the begining...to present - that was 18 years of APS of my wife - was draining... and no new advice that. He was our referal from the medcal board that refused our request for out of country care.

[Doug in reply to Skyllark]

His recommendation for a lower INR than many would recommend was the issue for which he was taken to task by some. Sorry to hear that he was less help than you'd hoped for. My family is in Toronto, and when visiting, I had some expectation that if I developed a problem, I'd try to get directed to McMaster. If UofT docs (listed below) are better, I'd sure like to hear about it.

[PterVee]

Hi,

Mount Sinai's hospital has a centre for autoimmune diseases, or you can try the thrombosis clinic at University Health network (UHN).

Peter

[john1969 in reply to PterVee]

Hi Peter,

Thank you very much for your post - can you please tell me how I can get access to these clinics you mentioned above? Can I make my own appointment? My doctor doesn't think I have anything except stress - but I know that there is much more going on.

[PterVee in reply to john1969]

Hello,

Most likely you will need a referral from your family doctor thet includes medical history, blood work, etc. Alternatively, you can try contacting their offices directly. You should be able to find their contact information on the hospital's website.

peter

[PterVee]

sorry I should have provided the names of the docs.

Dr. S. Carette at Mount Sinai -centre for autoimmunine diseases or Dr. B. Brien or Dr. E. Yeo - both are hematologist - at UHN.

Peter

[john1969 in reply to PterVee]

Thanks again for all your help.