Red nose

[Sadieagogo]

My nose, ears, and cheek area often turn bright red. Also my chest, and neck turn splotchy red. All of this happens when I am sick, tired, angry, hot, anxious or have cried. People always ask what's wrong with me. Does anyone else have this issue or know why it happens and what I can do about it? I often present to educators or have to hold my own in an intense meeting at work. It makes me look incompetent.

[MaryF Administrator]

Hi there I also get red and blotchy the iller I am, but have recently passed a Lupus test as well, do you just have Hughes or a mix of things?

Mary F x

[Sadieagogo in reply to MaryF]

So far I only have Hughes. My first appointment with a hematologist will occur later this month. I recently saw a neurologist for numbness he ran some tests a then told me to see a hemotologist. Thank you for your response.

[jetjetjet]

it will happen to me in the shower or in bright hot sun --- also eyes get blood shot-----------jet

[Sadieagogo in reply to jetjetjet]

Yes, I get this in the shower and the sun as well. I recently moved into a smaller office at work because my original office has a window to the outside. I am trying desperately to get this under control. It seems to get more intense with age. Thank you for sharing.

[Sadieagogo]

APsnotFab, thank you for this information. I think the sooner I really come to terms with it the better I will be able to manage. I will try the make-up trick and the rest of your advise as well. I really appreciate your feedback.

[jetjetjet]

hay- i know of alot of you have had some of these problems for a while------- i had not had them till i had a wasp sting that landed me in the er . since then is when my troubles started.the sun and the shower thing began.i have been on a steady decline since. i asked my doc's was there a reason for this or was it a result of the sting. i got the answer of we have never had a person like you so it's hard to say ???? regaurdless i still have this problems i just have to hook up the reality that i'm geting worse.i'm not a young man and have had a good life.so far-- time will tell.i'm donating my blood to research so in hopes it will help to try to get some answers. im told my blood is rear so in hopes it will help our cause.we are a strange bunch us sludge bloods.we can only hope that in the future they can come up with some help for us and those who follow. till then we go on with our lifes- we have each other - our loved ones. god bless you all ---------------------------------jet

[Sadieagogo in reply to jetjetjet]

jetjetjet, I didn't realize one could donate their blood. What a great idea! It is so wonderful to be a part of such a caring and open community. Remain hopeful and without fear. Thank you for sharing.

[louise78]

Hello, I get all blotchy on my neck and face when I'm hot, agitated, angry, stressed or sometimes just for no reason! I didn't even consider this as part of my illness as I have always had it. I just assumed I am one of those people who can't tell lies!! Yes it is embarrassing how harrassed I look when it happens, but I just tend to wear high neck tops to hide the flushed blotchy chest and that deals with the worst of it! Hope you find a trick to hide it, as for me I'm not too bothered! X

[sangje]

Hi -Yes I have exactly this ! I have now been diagnosed with Roseacea and all the doctors say it has nothing to do with Hughes but they are wrong ! It has a definite corrolation with any flares to the extent that people at work always ask if i am feeling ok 'because you have that red thing again'. On top of that even when well I get the flushing as a reaction to quite small amounts of emotion - just having a strong opinion or speaking in a meeting can have an effect and it is very frustrating as like you i feel people think i am anxious or not very competent in meetings ! It has actually got a bit better by daily use of a moisturiser from the US (quite expensive but worth it for the difference it has made to my life). Can let you know if you email me privately. All the best

Sanj

[Sadieagogo]

Thank you so much I will look into the camouflage makeup.