I currently dont have a specialist montioring my condition or giving advice to my GP. My old consultant as just signed my off and said look it life long all you need to do is take warfrain or clexane and see your GP for the rest of it.
Does anyone know a APS specialist in ... - Hughes Syndrome A...
Does anyone know a APS specialist in the North West?
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ClareSteggles
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whereabouts in the NW are you Claire ?
Ah yea forgot to add my location I am in Cumbria
I live in East Yorkshire. I go to St Thomas's in London, to the Louise Coote Lupus Clinic, who have specialists in APS. I go once a year or more if required. It is worth the journey. I was diagnosed by Dr G Hughes, who discovered APS. If you can go to London, ask your GP to refer you. Its wrong that you have been signed off with only your GP for support. Hope this is helpful.
Thank you bernieembleton i think i am at that point now. I just wasnt sure if you can get referred outside you regional area. I see a neurologist in newcastle but that only becasue the service for cumbria is provided in newcastle.
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