Popliteal Artery Occlusion: Has anyone... - Hughes Syndrome A...

Hughes Syndrome APS Forum

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Popliteal Artery Occlusion

TJSTICKYBLOOD profile image

Has anyone occluded their popliteal arteries and or have had an amputation because of this ?

5 Replies
MaryF profile image
MaryFAdministrator

I am pretty sure we have individuals on here who have had severe symptoms involving limbs and I am sure you will get some replies. There are papers out there, let me know if you want anything linked. MaryF

No amputation, but before my diagnosis with APS ( and also before Dr Hughes documented these symptoms as APS,) I had a number of severe DVTs which were centered behind my left knee. Very painful. Treated with warfarin, heating pads and elevation. Left with varicose veins.

TJSTICKYBLOOD profile image
TJSTICKYBLOOD in reply to GinaD

Thanks I’ve always been worried that amputation could be a possibility if o lost more blood supply .

KellyInTexas profile image
KellyInTexasAdministrator

I’ve had vein occlusions ( not arterial) in arms that have left my doctors with concerns with “future questions , albeit small concerns, of amputation.”

My vascular surgeon said if it were arterial clot ( larger vein) there would be more options to try - they could go in and deliver something like a clot buster agent just to the clot right there at the clot itself- without the risk of over anticoagulating your entire blood system.

I’m currently on rituximab, and about to add methotrexate ( injections so it doesn’t cause the nausea) to try to stop the inflammation. My rheumatologist and hematologist have me at a higher inr- because I clot through everything and and a lower inr.

My son has had this a few times. He has received in hospital care each time with clot busting drugs delivered via the occluded vein. He had surgery to close off the main femoral vein ( we have 2 in each leg), stents, filters and I’m not sure what else. No one has ever mentioned amputation.

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