Interesting article from Beverley Hunt regarding DOACs in APS

[RazD]

doi.org/10.1111/bjh.17634

[HollyHeski Administrator]

Thanks for posting- you just beat me to it.

[chrissybell]

Thanks, interesting (as I'm on Dabigatran, but have been for over 7 years and was unstable on warfarin).

[Piscesdreamer]

I wish researchers would reach out to our groups and survey us directly. There are several of us who use doacs without issues.

[Wittycjt in reply to Piscesdreamer]

Pisces dreamer: May i ask are you triple positive and what are you taking?

[Piscesdreamer in reply to Wittycjt]

I am triple positive and have been on apixiban (eliquis) since 2017. I am doing good.

[Wittycjt in reply to Piscesdreamer]

Any stroke history?

[Piscesdreamer in reply to Wittycjt]

No, I have not had any strokes that I know of.

[Tofino5]

I am triple positive and on apixiban for 3 1/2 years, and I'm doing well. This is after 10 1/2 years on warfarin and doing very poorly. One drug, warfarin, is the standard treatment and probably for good reason, however it was bad for me personally. So I'm glad I had the option to switch to apixiban, which allows me a better life!

We are all different, with different needs, and we have to have a good relationship with our APS specialist or other doctors, and trust them .

I would love to see a study where the 4 DOACs are represented equally. Here there was only 1 person on Edoxaban. Only 4 on Dabigatran and 12 on apixiban, with 54 on Rivaroxaban. Studies are expensive and time consuming, for sure. I'd just like to see apples compared to apples.

Just my opinion

[Wittycjt in reply to Tofino5]

If i remember right youve had a stroke?

[Lure2]

Hi RazD,

I am tripple positive incl Lupus Anticoagulant with very high titres since 2002. I am on Warfarin since 2012 and they have not found any clots whatsoever on me here in Stockholm.

I have two Specialists treating me since 2006 and I have had TIAs and microembolies.

I must only use Warfarin when tripple positive incl Lupus Anticoagulant.

Best wishes to you!