Self administrating my Warfarin almost!

[Greenmil3]

I know lots will tell me this is irresponsible but it is checked by my GP. They are happy for me to suggest and take any dose changes I need based upon my INR results as I want it at a minimum of 3 until I can get another appointment at Guys to show them my latest MRI ! if I can get my neurologist to agree to one based on my decline that’s been noted on my latest results of my neurophysiological test! The great way the NHS works! But as I said until then I am feeling better with my INR at the top of the therapeutic range and hoping my Prof at Guys agrees that my INR range can be increased to 3-3.5 sorry for the rant and rambling but been feeling really tired this week as it’s been tough in work!

[orygun66]

I do the same thing. I self monitor at home and based on the results, I change my dosing. Sometimes, I think the doctor prefers that. On the rare occasion his nurse calls to tell me to skip a dose of warfarin because my INR is too high, I ignore it because my hematologist has told me otherwise and sent him notes stating the same thing. Skipping a day only causes more problems by dropping the blood level too much so I will just take 0.5 mg, as long as I am taking something.

[MaryF Administrator]

Are you self testing as well as at the clinic? Keep on keeping a very close eye and checking in with your GP please. MaryF

[amy1808]

No lecture, I do it to , my haematology prof told me as long as inr doesn’t go up to 6 I will be fine , if it goes below 3 I feel awful . You know your own body so listen to it. I self test every other day . If your tired get your bloods done , I just found out I’m anemic , my iron stores are depleted, we as APS suffers must keep an eye on certain levels , b12 ,D ,ferritin and folate get them checked xx

[Greenmil3 in reply to amy1808]

Thanks Amy planning on doing the private med screwing of my blood as per the pinned post

[daisyd]

I tried to do the same I self test and I know what I have eaten or dunk my INR like most is supposed to be between 3-4

I see the haematologist at st Thomas she told me never miss a dose unless INR over 6 and then probably not the whole dose

The neurologist at Guys told me that people who self test are more likely able to keep In range

Before I self tested I had days were I felt really depressed I know now that was because my INR was too low

I have to send my result to hospital once a week and do another test in the middle of the week

Told not to test on a Sunday, I will still if I feel I am not right !

I use to send along with an email with result what I thought i should be on but was often changed