A story from the New York Times - Hughes Syndrome A...

Hughes Syndrome APS Forum

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A story from the New York Times

MaryF profile image
MaryFAdministrator
8 Replies

nytimes.com/2018/05/31/well...

The woman concerned is busy reading our charity website.

MaryF

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MaryF
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8 Replies
HollyHeski profile image
HollyHeskiAdministrator

Lets hope she has an APS specialist.

AnnNY profile image
AnnNY

Oh, that's great, Mary! I wish her the best.

Wittycjt profile image
Wittycjt

Sounds very familiar when I read it! Hope she is going to follow directives and be safe.

KellyInTexas profile image
KellyInTexasAdministrator

That’s fantastic! She could really bring attention to our cause, being that she is a journalist with the New York Times. It’s a shame she didn’t mention the charity GHIC.world in the article she wrote, or perhaps that’s not allowed by the times as it’s seen as “ specifically promoting” a certain, specific charity?

Did you reach out to her, Mary? Is that how she found out about GHIC charity? smart thinking! ( Otherwise how did she hear about it? )

As a business owner, and someone who invests quite a lot into firms who build my website(s) and PR/ advertising/ etc, I always like to know how I’m reaching my intended recipients. ( is there a way to know?)

TJSTICKYBLOOD profile image
TJSTICKYBLOOD

Fab story thanks for sharing

Ageingfemale profile image
Ageingfemale

A great story and a possible source for good in highlighting APS.

jetjetjet profile image
jetjetjet

I tried ti E mail her but i can't , I don't have the correct program !! can some of you try ??

MaryF profile image
MaryFAdministrator in reply to jetjetjet

I made contact, and she likes our charity website. MaryF

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