Crossed vision

[edgewater100]

Has anyone experienced crossed vision, usually in in one eye, my last INR was 3.4

[Lure2]

It is a common sign of APS when having neurological symptoms. I suggest you read "Sticky Blood Explained" by Kay Thackray. She had a lot of visual symptoms described in that book. I had those very often also before I started Warfarin.

Have you only had it once and then your INR was 3.4? Was it in the vein or do you selftest now?

Best wishes from Kerstin in Stockholm

[edgewater100 in reply to Lure2]

I can't seem to get my hemo doctor to understand about self testing, they think only Vein stick is accurate due to the DX of APS, so I get my INR check 2 times a month. I get the crossed vision often and auras as well, they have also found I have a slowing in my left frontal lobe during an EEG, they are suspecting seizures as well, I have APS and SLE, any thoughts?

[Lure2 in reply to edgewater100]

Yes of course vein stick is accurate but our INR changes a lot in 2 weeks so you should be tested more often.

I can tell you I selftest every second day to know that I am in range. I have today a therapeutic level of an INR of 3.5 - 4.0. What is your therapeutic level?

I do not know if you have got a Specialist of APS as that is what we need with this illness and symptoms. Do you live in Great Britain?

I am primary APS but you have got two autoimmun illnesses. Have you thougt of getting a Specialist of APS who is also a Rheumatologist?

Kerstin

[edgewater100 in reply to Lure2]

Supposedly my Rheumotologist is my APS specialist and manages my Lupus he seems to be more focused on the Lupus, he try's different meds and says the plaqunil is for the APS, the Hemotologist that manages my INR can't seem to figure out how to get a coagu check ordered through my insurance? Very frustrating!

[Lure2 in reply to edgewater100]

What therapeutic range has he put you on now? First of all you should be properly anticoagulated before you start selftesting on your own. I think you still have symptoms even if you are on Warfarin. Perhaps you are on a too low regime. Twice a month is very seldom. Too seldom. Do you have all the three antibodies or are you diagnosed by symptoms?

Kerstin

[SoulRebel-APS]

I think you will find many APS patients have visual issues as a result of multiple strokes. I have a lot of double vision and blurry not to mention loss of visual field. You are not alone!

[MaryF Administrator]

It is not uncommon to have neurological symptoms, however if this is a new symptom, please do seek medical advice from your GP and also perhaps speed up your next appointment with your main Hughes Syndrome/APS Consultant. MaryF

[MaryF Administrator]

It is not uncommon to have neurological symptoms, however if this is a new symptom, please do seek medical advice from your GP and also perhaps speed up your next appointment with your main Hughes Syndrome/APS Consultant. MaryF

[LWDP]

I am tia/stroke free, on theraputic warfarin with INR between 2.0 and 3.0. I have double vision (up and down, not side to side) OFTEN and though my opthamologist refuses to believe it, only in one eye at a time. You learn to "see" through it somehow. I did once get some prismatic lenses for when it's really bad and I have to drive, but I seldom have to use them any longer since I have learned to compensate for it.