Low Drvvt

[AmyHR38]

I just found this community while I was trying to research what a low DRVVT means. Most of my blood work came back normal but my drvvt was very low. It is only 23 seconds. Normal range is 33-44. Could this mean I have Hughes syndromes?

[Manofmendip]

Hello Amy and welcome to our friendly community.

We are not medically trained so we cannot interpret test results for you or give you diagnostic advice.

Please familiarise yourself with the charity's website:

hughes-syndrome.org and ask your GP to refer you to a specialist in APS/Hughes Syndrome.

Where are you from?

If you are in the UK then there is a list of specialists on the charity's website at:

hughes-syndrome.org/self-he...

let us know how you get on.

Best wishes.

Dave

[AmyHR38 in reply to Manofmendip]

I'm in the US. The tests were ordered by a neurologist. Because I'd my vast array of symptoms that I've been dealing with for years I finally went to a specialist. They tested for Lupus and I just had brain MRI yesterday to check for MS. I can view all my test results online but I don't see my doctor to find out how she interprets them until the 28th. It's driving me crazy. The only test that is abnormal is the DRVVT. It was in red saying low. I've been all over the internet trying to figure out what that means. Everything I've read about that test just tells me what the test is but nothing says what a low test means. Since my lab has it measured in seconds and my result is 10 less seconds than the bottom of the normal range it sounds like my blood clotted super fast which makes me wonder if it could be "sticky".

[MaryF Administrator in reply to AmyHR38]

Hi, I enclose this link with names in the USA, I am glad you have a Neurologist who is looking into things in detail: apsaction.com/ It is likely later on that your tests may be repeated, if he feels you have Hughes Syndrome/APS - Sticky Blood, Antiphopholipid Syndrome, do feel you can come back on here. MaryF

[AmyHR38 in reply to MaryF]

Thank you, yes!

[merrohawk83 in reply to AmyHR38]

Hi there - the DRVVT test is a test for the Lupus Anticoagulant (this is NOT the same as Lupus, rather a test for one of the three current antibody tests for APS/Hughes Syndrome). It sounds as though your clotting time on this test was less than the normal range, and I'd therefore be of the same opinion as you, however, there are many factors that can decrease your clotting time on a DRVVT test including recent illness or inflammation. It would be usual (in the UK at least) and therefore necessary for your specialist to repeat the test at a later date (usually around 12 weeks later) to see if the result is consistent. Only then can you know whether you do indeed have APS. Good luck.

[AmyHR38 in reply to merrohawk83]

Thank you for the input! With this syndrome is it common to get aches that feel like they are in your bones and joints?