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Hughes Syndrome APS Forum

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Scroll down this link if you are in the UK, to play the TV This Morning Clip with Dr Chris Steele.

MaryF profile image
MaryFAdministrator
9 Replies

Here we go,

itv.com/thismorning

MaryF

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MaryF
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9 Replies
Manofmendip profile image
Manofmendip

Thanks Mary. Do you know where in the programme the interview is? Dave

MaryF profile image
MaryFAdministrator

Keep scrolling down the page and you will see a little film, it show bite size chunks of the programme, like recipes and things, keep going down until you see it. MaryF

panda60 profile image
panda60

Thank you Mary.

daisyd profile image
daisyd

Thanks Mary

Harriet70 profile image
Harriet70

Thank you.

lynzy profile image
lynzy

Thanks Mary, I had tears in my eyes watching, and lovely to see the positive outcomes diagnosis can have for some people, especially Karen and her family in this instance.

AngelinaN profile image
AngelinaN

Thanks Mary - a shame the focus is still only how this condition affects pregnancy. There needs to be emphasis on how it affects every day life - sad but true most people like myself only get diagnosed thru recurrent miscarriage - but I was then left untreated for 15yrs

my health really went downhill - and thought I had MS and temporary paralysis.

This disease affects your entire body (and men too) its not just a pregnancy complication

MaryF profile image
MaryFAdministrator in reply toAngelinaN

Yes I hear you, but the article on the programme, was due to it being National Baby Loss Awareness Day, however the information is getting out there now, whether it be our members actually going to the press as ambassadors and doing articles in the paper or slots on the tv or radio! Also a few months ago via a debate on our condition in The House of Lords. The serious need to educate the medical profession further etc.

Yesterday's article was slanted towards miscarriage and still birth. I am sure more information will become widely available. In my own case i went to the papers, and I also distributed books on the condition in my local area, to medical staff involved with either myself or the children.

My own son has the condition and my late father had it, also probably my brother! He has had a stroke and has very marked symptoms, but it has not shown up in tests, however mine did not for years.

Best wishes. MaryF

AngelinaN profile image
AngelinaN in reply toMaryF

Thank you for your reply - I appreciate

and yes my father had it which is where mine came from...he died @ 55

I also lost 7 babies so I feel for anyone struggling with pregnancy - all new life is a miracle.

bless you for all you do xxx

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