My daughter (aged 21) has been ill for 7 years and variously diagnosed with Ehlers-Danlos syndrome, Fibromyalgia, Postural Tacchycardia, Chronic Fatigue, Functional neuropathy etc. No-one could make head nor tail of her symptoms until we saw the wonderful Professor Hughes (thank you to all on here who pointed us in this direction), who diagnosed Hughes Syndrome and Sjorgens Syndrome. She has been on a trial of Plavix (apologies if this is the wrong name) but the headaches etc continue, so he has asked her to go on a trial of Heprin. She is at university, struggling as her health is so variable. I wondered if anyone could tell us what she should expect in the trial, and anything she should look out for. It is several weeks since we saw Prof Hughes and she still hasn't seen the GP to arrange the trial, and I am sure she is a little scared. Are the needles little ones like diabetic needles, or full sized ones. Is it easy to administer or should she get a nurse to do the first few to teach her how to do it?
Many thanks for help with this, and just for this wonderful website which has got us through many dark times xxx