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Sticky Blood-Hughes Syndrome Support
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I had stroke in 2007, always having headaches is normal? i have hughes Syndrom, my inr is usually 3.6 - 3.9 is to lower? it is normal or not

I take plaquenel 200mg, rampril, none of doctors has answer, it could my scar tissue of my stroke 2007, or could my Hughes, or my INR is to lower, thanks for hearing me.

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Hi, I have probably asked you before, but where are you located? Also yes it is possible to have residual pain from your stroke. Many members on here have to take additional medication for migraine headaches, so this is not unusual. Also the INR varies between individuals. The setting of your INR has to be set by your medical consultant. I am sure other members will give you their own experience. Is your medical consultant a specialists with Hughes Syndrome/APS. MaryF

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I live Alberta Canada, my blood spec he knows about the Hughes

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You have residual pain b/c my stroke was in 2007

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The INR is quite ok if it is set by your Medical Consultant up to 4.0. Important with an APS-doctor though.

Best wishes from Kerstin in Stockholm

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You can sometimes get what is know as post traumatic headaches after a stroke caused by the damage in the brain. They last for between 3-5 years and then gradually fade away. My neurologist told me this after mine and he was correct. Mine have gradually got better.

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Sorry the headacues have persisted. I do hope they will go away.

-- thinking of you,

Gina

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I had a stroke about 5 years ago. I have been taking Lyrica (125 mg/day) and Nortriptyline (20 mg/day) since then.

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Hi Marvin, Do those drugs help you with APS? Are you on warfarin or plaquenil or else as an anticoagulating drug?

Best wishes forom Kerstin in Stockholm

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I am on Warfarin and plaqueil(200mg once a day)

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We are no doctors here and cannot answer Medical questions . You have said your blood spec knows Huges.If your therapeutic range is 3 - 4 then your above mentioned INR is OK

Best wishes from Kerstin in Stockholm

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