Update..........: Hya all-as per my... - Hughes Syndrome A...

Hughes Syndrome APS Forum

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Update..........

emmaj profile image
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Hya all-as per my previous posts my newspaper article is soon to go to print with the national papers,then locally. I have also had a telephone interview today with 'pick me up' magazine as PR specsavers have been good enough to repay us for my time by contacting a magazine to get a wider audience to be made aware of Hughes and eyesight problems that can come from auto immune issues and they are running an article too-so very soon it should happen!!!

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emmaj profile image
emmaj
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MaryF profile image
MaryFAdministrator

This is excellent news, well done, this sort of thing helps raise awareness an awful lot. I will forward this to the charity. MaryF x

Brilliant Emma - your draft article looked fantastic and you will undoubtedly help spread the word. We're doing really well this year with the mainstream media what with this and the BBC Casualty episode! Thank you so much for volunteering to do this and being so brave to share your experiences. Please do let me know if I can link to any articles on the charity's Facebook page etc. Kx

emmaj profile image
emmaj

Thanks, everytime ive been in hospital a pack of students have come round and done essays and research one me,but i never believed id be able to help this much,im really pleased-like i said to the interviewer if it saves one little baby then its all worth it. Il keep you all posted,and if i remember il ask the magazine to put details of hughes foundation on the article x

Lure2 profile image
Lure2

emmaj,

You can be proud of yourself. Obviosly a great step forward of knowing Huges syndrome in public.

Kerstin in Stockholm

Zezes-nan profile image
Zezes-nan

Well done Emma for raising awareness hopefully someone can link the articles to the Charity's face book page or on here as I don't buy a paper but will keep a look out for the 'pick me up' magazine

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