I'm struggling with my gp, he said he would refer my only if The blood tests came back positive, he did two out if the three blood tests and they came back negative. He wouldn't send for the beta glucan test.
How do I get an appointment with prof... - Hughes Syndrome A...
How do I get an appointment with prof hughes?
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Hi there you just ring London Bridge and ask for the next appointment available, you will have to self refer and self fund, However he has a long list, his colleague Professor Khamashta has a shorter list: Here are the details: Just ring and ask for his secretary: londonlupuscentre.co.uk/
Let us know how it goes. Mary F x
Hi Lolly.
I agree with Mary. Kim is the lady who does the appointment bookings there, she is great.
Good luck and God save us from lousy GPs and other difficult Drs; don't we have enough to put up with!
Best wishes.
Dave x
Good luck - and get that appointment It was only the antibeta2glycoprotein that I was positive for. I was diagnosed just this April after 20 years of symptoms. Our local lab is now automatically adding this test to the others requested for Hughes. I am off St T's this week as my local consultant says my TIA's, INR are very unstable and he wants a second opinion.
Thank God for Professor Hughes, Professor Hunt and the team!
Lynn.x.