Jobs worth GP strikes again, I'm so mad - Hughes Syndrome A...

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Jobs worth GP strikes again, I'm so mad

Jade profile image
Jade
4 Replies

I mad again on behalf of my adult son.

I have written before about his useless jobs worth GP. The last thing was giving him exactly 30 heparin to tide him over until he saw the Prof again at end of May. But no follow up appointment, this guy only works part time too.

The prof want DS to see Dr D'Cruz at St Thomas to get brain MRI and more bloods etc on NHS before going on warfarin as his migraines have not improved.That's great but I guess the wait will be months.

However the prof wants him to stay on heparin in the meantime, there in hangs the problem.

The jobs worth GP who does not want to give them. He has already gone 11 days with nothing again and brain power etc is diminishing.

My worry is with positive bloods he is at risk and the GP sees no problem in him having nothing except loads of sumatriptan for daily migraine and the plaquenil.

I can't think which way to turn now as even having the best consultant on side we are stuck.

Rant over.

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Jade profile image
Jade
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tim47 profile image
tim47

Do you/your son have paperwork to support your son getting heparin? If so can you talk to other doctors/practices and see about changing to doctors who might be more understanding. I have changed GPs in the past for similar reasons though it was a good while ago and I had a fair degree of choice available. It sounds like your son needs a different doctor if you have any choice.

MaryF profile image
MaryFAdministrator

Yes, another doctor in the practice, see the practice manager and ask for advice without being cross, present it as practical problem, ie keeping the hospital, and GP in picture etc. would make less work for them etc. Mary F x

Jade profile image
Jade

The prof wants him to have heparin while he waits to go St Thomas.

Ultimately he wants him on warfarin but in view of the frequency and severity of migraines wants a brain MRI first and maybe EEG to be sure nothing else is going on.

I am wondering how long the wait will be to see Dr D'Cruz, the Prof is writing to him too as he really wants it to be DrD'Cruz to see him.

I agree that it all boils down to hard cash. I have been taken off Heparin despite agreeing with the hospital that I should stay on it until my INR reaches 3.0. Even when my INR was as low as 2.1, I was still told to stay off it. The cost of Warfarin to a working individual is huge. The time away from work having to attend hospital clinics to have blood tests where you sit and wait for hours on some occasions is time consuming and frustrating where you are subsequently at the mercy of your employer due to the amount of time off you're having. Heparin is actually "cheaper" for the patient, despite the cost to the health authority.

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