Hello all!
Just found this group. I've never been formally diagnosed because doctors don't seem to want to listen, even when I bring stuff I've printed out from online and how it matches my symptoms exactly.
I suffer from this condition a lot. It's painful, and it makes me feel disgusting.
I had only met one other person irl with it, and she is now my ex best friend. I just feel like I have no one to talk to when I'm having a bad flare up.
Many people struggle to get a diagnosis of HS. I ended up going to out of hours with a really bad one with a print out of a BMJ article telling them this is what I've got since then my GP has never questioned it - although my mother has it too which is more than likely why they believe me. they still wont do much about it though. been waiting on surgery since sept but that's after years of fighting with them and they still wont refer me to dermatology! This forum is pretty quiet, but I'm here if you need to vent.
You need to see a dermatologist
Change doctors until they refer you if you can’t self refer
Most treatments for HS are hospital only (in the U.K.)
Humira is used as a last resort in the U.K., its a biological binder and has me in remission 10 months a year
I still have the autumn flair but only places where I had tracts before the Humira treatment
