New to the site, not the disease! - Hidradenitis Supp...

Hidradenitis Suppurativa Support

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New to the site, not the disease!

smithm21 profile image
9 Replies

Hello everyone, I have been suffering from H.S since I was 18 and now I am 31. I first got it under my armpits, and then it was surgically taken out. Had another outbreak last year 2016, and it was on my groin and butt. Which made it painful and I actually had to quit my job because of it. I am taking three different medications and they are working. I stopped the medication for a while, and then got an outbreak under both my breast, Right now I am putting a hot town under my left breast to ease the discomfort and pain, while i wait for the medication to kick in..does anybody have a quick tip for pain and discomfort while waiting for it to pop?

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smithm21 profile image
smithm21
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9 Replies
Hun77 profile image
Hun77

Hi try applying cotton swab full of alcohol or TCP. This will reduce the pain and the swelling. Keep applying constantly. Tip: make a bandage. Good luck.

smithm21 profile image
smithm21 in reply to Hun77

Will have to do this... Thanks For the Advice :)

Arya97 profile image
Arya97

Hello

I take a bath for at least 20 minutes and paracetamol.

Now I only get outbreaks when I'm eating the wrong foods but it's so much more manageable and less depressing.

Please look up the autoimmune protocol and 'the hidden plague it could help longer term.

Ad3l3123 profile image
Ad3l3123

Hi,

I use vicks vapour rub, I find it helps numb the pain & pressure and draws it.

If I have one brewing I had a hot bath and the put on the vicks at bedtime, it either bursts throughout the night or early on the day after (not good when your working). But I always take products etc to work with me.

If anyone else has any other products, treatments they use please let me know.

Many thanks

A

smithm21 profile image
smithm21

Thank you for the help.. I just did a lot of hot compression which seemed to help a lot. But I will try the Vicks things, if I start suffering from another outbreak..

Arya97 profile image
Arya97

While waiting for them to pop id just cover with plasters and dressings. Worst thing for me is having anything rubbing against them. Even the little ones so I can sit properly.

making sure I put sudocrem on before I go to sleep is important when it has popped. It contains Zinc and is so important for the healing. I apply until fully healed.

Panther77 profile image
Panther77

Hello, I hope you’re flares are getting better now. Are the medications you’re on for HS? If so, would you mind sharing the name of them and a little bit about them please? I’ve tried one medication and a couple of creams and ointments but they haven’t helped unfortunately.

smithm21 profile image
smithm21 in reply to Panther77

So I am on two antibotics.. one of which is clindymicine and and refampin.. then i am also on Spirilactone. These three combinations of medications helps alot clear up any outbreaks I might have.. they work very well for me.. but only if i can remember to take them lol

Jessicaelizabeth profile image
Jessicaelizabeth

Hey there, I hope your HS has relieved a bit since your last posting. One of the medication that works for me is cephalex for the flare ups it just about starts to work right away and to maintain I take spirolactone.

What has helped me in the past was braggs apple cidar vinagar with the “mother” in it. It’s a natral anti-fungal and bacteria killer to prevent any bacterial infections from coming up. The little stands floating in the bottle are your friend, that’s what is called the “mother," strands of proteins, enzymes and friendly bacteria that give the product a murky appearance. Always shake the bottle first to wake them up and get them floating before putting on a cotton pad and applying. This also gave me relief from the pain it felt good, also after I would apply it the discharge would sort of decrease and the smell would be gone.

Don’t be put off by the apple cidar vinagar smell either it could be pretty dang, I hate it but it helped with the discharge, smell and anti-cicrobial from bacterial infections.

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