Hello, given the current pandemic of Covid19 which originated from china i hope more of you will be willing to open your mind to another disease which is currently unidentified which originated in China. I have had this disease for 2 years and speak to hundreds of other patients who like me are ignored by doctors. Please help raise awareness and be careful when having sex even protected as this passes via saliva and many patients have infected their entire families. I caught this in Hong Kong but live in the UK and this needs exposing after the chinese government have covered it up for over 10 years.
You didn't mention this when you posted on the " sexual health matters" Health unlocked page . Interesting that this falls exactly into the category mentioned on the Chinese websites : :
"most people in the group had no distinct organic disease, just a small number of biochemical abnormalities. But the patients said that their symptoms are in contradiction with our conclusions. Out of the two points of view, the physical symptoms and neurological disease symptoms, we believe the main cause relates to mental factors."
so these are people who have an AIDS phobia, and when they repeatedly test negative for HIV , decide it must be some other infection that hasn't yet been discovered that is causing their symptoms.
This reminds me of "Morgellons disease "
I think they key feature of this "newhivlikevirus " is that the patients are mostly male and have "engaged in high risk sexual behavior " according to the website you linked. Its an anxiety / guilt driven cluster of symptoms. It's not an infection.
You have a valid point, but I have been at this place and I know extreme anxity is very short. Most people will feel normal after 3 months which is the window period but the symtoms persist a lot longer even if there is no such anxity. So it has to be something additional to anxity
Both of you are making the mistake of looking at cd4/cd8 ratios as ABSOLUTE . They are not. They fluctuate all the time . Our blood is a soup of cells, plasma, electrolytes that change all the time. It is the progressive decline in CD4 cells that is the hallmark of HIV infection.
I always get a complete profile done. There is definitely a decline in my CD4 and CD8. I’ve contacted HIV doctors all over the US and that keep telling me I do not have HIV because of the non reactive antibodies since the first test in July 2019. I have been seen by 8 different HIV clinics, and some major universities such as John Hopkins and Washington State University, but they are literally looking at lab values and not symptoms. Just so frustrating.
Due to frustration of being ignored by doctors a group in china basically flew around cities infecting all the sex workers and donating blood to try and raise awareness. If only i knew about this prior to my encounter i would never taken the risk.
This is an interesting subject . There is obviously a psychological condition causing extreme anxiety and fear of HIV infection . However there are also people who have falling CD4 blood counts , which proves that for some at least this is a real physical condition . Because CD4 counts are only taken in relation to HIV infection there is no way of knowing how wide spread failing CD4 counts are , and if it is connected to any other condition .
If you had a progressive decline in CD4 cells, you would develop opportunistic infections like as in HIV disease. There are rare genetic conditions with congenital CD4 depletion.
my symptoms are exactly as described in the link. in sept 2018.. lymph nodes are swollen all over body, have chronic tonsilits till today, sore throat. and from few months i am having lot of fungal infections and feel very week day by day.. i have done test for HIV after 2,3,5 months and they came back negative so doctors were not interested to see me.. i am getting scared now. should i have to do a retest again.. or is it a chinese hiv like virus.. if it is what should i do to stop feeling sick and stop this skin and fungus infections. i have night sweets, scaly skin, peeling skin from palms, under foot, cant breath properly while sleeping.. very hot skin on lying down. its nighmare every day. kindly suggest.. Thanks in advance.. Galen70 , Xabi141214 , Griffon
It is likely the Chinese virus you can speak to other sufferers in this group for supplement advice etc. Did any of your family get ill? discord.gg/VuUFmWs
i am really scared now.. because they also had same symptoms like me in the beginning but they are all normal unlike me.. its 2 years and i feel shit..
If you have all the symptoms you are describing , you should be seeing a doctor and getting a full work up for known infections and problems. Beginning with basic blood investigations like an FBC , CRP etc and then building up to screen for infections like TB Sarcoid HTLV. If you have something significant wrong with you , something should flag up on your markers. Consider syphilis , hepatitis screening etc.
Night sweats you need to rule out thyroid , lymphoma and TB. You're not going to get a diagnosis pulled out of a hat on a forum. You need to see a Dr for a full medical workup , bloods +/- scans .
Well he wouldn't be posting on this forum if he wasn't seeking advice , would he ? and you are assuming a lot on behalf on an individual you don't know anything about. Im not going to get into a mudslinging match with you Mr Xabi, you are entitled to your opinions and so am I.
I am not sure about subcultateneous fat loss but recently I lose 20 pounds weight. There are two main symptoms, muscle twitching and stomach rumble making sound and burp all the times. But seems everyone has different symptoms.
This disease is real and it is ignored by all medical professionals. That being said , you can recover and live a normal life , it took me about 3 years my cd4 count is back to normal and I feel fine. I was in really bad shape during the initial stage of this horrible beast. It spreads by saliva and all body fluids. I caught it from a blood splatter to the eye. I spread it to my whole family my wife recovered but my 3 year old at the time suffered with me for years. If you are in the first year of this disease you are in the most dramatic phase. Things get better after about a year and should clear up after 3 years. Hang in there and stay tuff better times are coming. My remaining symptoms are minor and definitely manageable and sometimes almost unnoticeable.
Hi White tongue, where are you from and how many years have you had this? I am feeling much better like you say now around 3 year mark but still have some mild symptoms including fatigue. The first year i do not want to ever think about again.
I've had it 3.5 years I was really sick with it almost bed ridden. About the 2 year mark things started getting better I was a very in shape athletic person and this took me down like nothing I had ever experienced. The bad thing about this disease is that we remain infectious. I believe the first 3 months we are the most infectious like through air droplets then as we heal we become less infection but can still pass it through direct contact via saliva. I'm not having the symptoms like I was at all. The only ones that remain are slight muscle weakness fatigue digestve issues and mouth issues like white tongue and dryness but they are all minor compared to how I was. All the other ones like rumbling stomach, insomnia, vision problems, skin rashes, mental issues, muscle loss, loss of appetite, tinnitus, loss of libido, erectile dysfunction and sensitivity to sun light have all gotten much better if not gone away. I think a lot determining factors on recovery stem from diet and exercise as well as immune boosting and antiviral/parasite supplements. No matter what keep living your life and if you start to feel better let it go. This thing is real and it took almost 3 years of my life , I'm not going to let it take anymore.
Hi, how you got blood splatter to your eye. Glad your doing better . Your symptoms sounds just like my but my exposure was sexual. . My cd4 counts also decrease to the 300’s now 588. I am currently been evaluated at NIH. if this is HIV they have to find it. I keep u posted . Your are discord but don’t sign in there anymore. Take care
Basically, worst thing is that you are more fatigue but I haven't been 100% healthy even before this. So, basically some days are better, some are shitty but I still can live and etc.
First you need to fix your mindset and etc. Without it, you will be always sick and unhappy.
P.S Only long-term side effects for me are the loss of skin elasticity, weaken muscles.
Hi thankyou for sharing this. It sounds exactly like my symptoms. Exactly 1 year ago sore throat white tongue migraines little pimple red spots appearing on my body night sweats lasting around 2 weeks then waking up with sweaty palms and bottoms of feet then all eased off for a while just the odd thing which I knew wasnt normal and now sore throat/blocked for the last 3 months getting slightly better now tho. At beginning was convinced I had HIV went 4 times to the clinic all tests negative.
Do you think there will ever be a cure for this and is there no way of doctors identifying this disease?
To add I searched high and low at the beginning found the article on newhivlikeviruschina and after a couple of months or so did relax a little hoping it would go away. The most worrying part is what if this virus is killing g me slowly and has shortened my life resulting in the worse etc
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No HIV transmissions with undetectable viral load
Does this look like HIV rash?