Hiya Only came across this community by accident and decided to join up as I have precious little support else where as an HIV+ gay old geezer, still I have my mate (profile photo) who I inherited recently following the death of our Mama.
Before she passed she still used to say shhh! don't tell people you are + no one understands what it's REALLY all about.
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Bearhead
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Hi I understand about having to keep my diagnosis to myself due to people not understanding about what being positive means. I don't have anyone to speak to and I suppose I just put it to the back of my mind and just get on with it. However it is always there making me feel different. Happy to chat whenever
Thanks for the response. I guess the most awkward thing is that when I become an in-patient (as I have done at least once per annum in last 5 years) I HAVE to make sure that I keep control of my HIV medications because if you hand them over to the ward medicines trolley they always seem to get lost. Not only that but they still havn't trained the nurses that you need to take your medications according to your own schedule not theirs.
I' guess I'm. older too 50? And don't get much support other than from my partner. This site is helpful but not super busy. Not many people need to know my diagnoses. But the few times it comes up in general conversation with friends or strangers it feels best to keep it quiet. As people make assumptions about hiv+ people. I'm wondering if we could set up a Facebook page. I wonder what response it would get. I get messages from gmfa and Terence Higgins trust. Maybe we could try to make those pages more active. Supportive ?
Thanks for the response. I guess the most awkward thing is that when I become an in-patient (as I have done at least once per annum in last 5 years) I HAVE to make sure that I keep control of my HIV medications because if you hand them over to the ward medicines trolley they always seem to get lost. Not only that but they still havn't trained the nurses that you need to take your medications according to your own schedule not theirs.
Me too; older, 48. woman, kids, alone.........poor me. I'm ok, but it can be isolating. I would be very interested in connecting with other's. Diagnosed 4yrs ago, treatment last year. all good.
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