Test results???

[Lyn999]

Hi there, this is my first post but have been a member for a couple of months.

I was diagnosed with a very fatty liver following a ultrasound last year + with Hep C last October + have completed a course of Maviret with no side effects other than fatigue which I have had for years anyway - though I was very Ill at week 7 of treatment when I caught the flu. At my very first appointment at the Liver Clinic/Hospital I asked if I could be kept up to date with all my test results + did indeed receive a detailed letter of my blood tests + what was going to happen next. After my diagnosis I was dealt with by the Hep C nurses at a satellite clinic. At my ‘end of treatment ‘ appointment I asked if I could have some information/copy of my records regarding my blood tests, a fibroscan + later ultrasound - but was told I didn’t need them as ‘I was fine’ After further discussion I asked about my Liver Function Test (not sure what I needed to ask for) + was told it was now 15, Fibroscan = 7 + my ultrasounds were ‘fine’. I also asked about drinking alcohol + was told it was ok to drink ??? + when I asked about when I would next see a Doctor regarding my very fatty liver I was told that I wouldn’t need to see a Doctor.

I realise that in the grand scheme of things I have been quite lucky + there are people on this site who are in a worse position than myself but I would still like to know what my results were so that can hopefully manage my health better in the future. Has anyone else has any problems getting info regarding their test results? Also should I be seeing a Doctor so that my fatty liver can be monitored - or am I worrying over nothing? For some reason I seem to be fretting over not getting my test results + being able to discuss them with someone + can’t understand why it should be such a big secret!

Please let me know what you think. X X X

[navigatinglife]

Hi Lyn. I am in the same boat but have had no test results bar a phone call at week 6 of maviret telling me I wasn't clear but got viral load down to 650. I have never received anything in writing. I do go back 12 weeks after end of treatment which will be at end of April. I finished mid january. Have you had your 12 week review after finishing the course? I don't think it's so much a secret as the staffing and protocol. I haven't seen a Dr once. The liver nurses pass on results to consultants. I am not fretting but feel rubbish. Good to see your liver function I guess this is your ALT is so low & good fibroscan. If they tell me I'm fine in April or May if they contact me I will put it all behind me. If you feel ok Lyn try not to stress. go by how you feel but as me I am going to push for a scan in 12 months If I do or don't get more treatment. Seems some counties operate differently. Heyho what can we do 😁glad you posted as I know I'm not the only one. 😂😍😍

[navigatinglife]

I think they should definitely be giving us all the results especially if they're good ones as its reassurance & that in itself is beneficial to our health when dealing with this, xx

[Sillysausage234]

Hiya Lyn,great to hear your virus free,if I was you ide just crack on now now and eat healthily don’t bamboozle yourself with test results that’s for the specialists to sort out.if they say you don’t need any follow up appointments they must be happy with your situation,you’ve done so well to get treatment done and dusted👍

[Mizzkent]

Hi Lyn, congrats on completing treatment I finished Maviret today😊 I will ask tomorrow when I go the hospital. Although I have had copies through the post from my blood tests and scan from the beginning of treatment and the 2 weeks I get the 4 weeks results tomorrow.

If they have told you you don’t need to see a doctor then try not to worry too much.

You could always go to your GP as the hospital should be sending on all your results.And your GP will be able to explain what each one means in more detail.And just ask them to print a copy off for you.

Best of luck and best wishes Cathy xx

[Cara78]

My doctor never new I was on maviret until I told him. He seemed surprised it didn't come up on computer. I was visiting because I had terrible skitters for 5 days. Don't know if this helps but it goes to show the lack of communication going on within our healthcare system. If you want test results just go to your local std clinic maybe they will do it faster.