Post EP study: Hi Have appreciated your... - Heart Rhythm Diso...

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Post EP study

Tess4 profile image
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Hi

Have appreciated your stories in particular as I’ve been awaiting an ablation for Ventricular Tachycardia.

So my story is - 2 days ago I finally got my appointment and had the EP study. Very well briefed as to what to expect. They did 2 circuits but my heart was not misbehaving. Then they tried to provoke it with a drug whose name escapes me but it makes the heart race . I had little sense of palpitation maybe cos I was sedated. They tried a bir more of the drug but to no avail. The consultant decided there was therefore mo need for an ablation.

I was taken to the ward to rest and felt somewhat confused . The nurse talked me through the discharge report that described it as a success. I was glad to hear this but confused as I thought there would be something to ablate.

Thankfully I got to speak to the consultant before I left hospital as he could explain that the EP study had now ruled out the diagnosis of VT . Eon top of which I could come off beta blockers which have always made me feel listless and increased my circulation problems.

My predominant feeling is of a burden of anxiety being lifted. There is also a degree of bitterness that for 2 years I have been misdiagnosed.

Hope this is of interest and relevant to some of you out there. Take care and I will probably be leaving the forum soon but wanted to say bye rather than just disappear

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Tess4 profile image
Tess4
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5 Replies
meadfoot profile image
meadfoot

Great to hear you have had a good outcome. Thank you for sharing and best wishes for a heart calm future.

siouxbee19 profile image
siouxbee19

How did they determine you needed an ablation for VT in the first place? How long were you in VTach? Or were you ever? So many questions, but if it was me, I'd definitely get a 2nd (or 3rd) opinion!

Over time, I've wore countless numbers of external heart monitors, had numerous tests done, angiogram (heart Cath), EP study, even had an implanted loop recorder, none of this detected any "bad" arrhythmias, such as VTach.

Guess what detected it? My home blood pressure/pulse/arrhythmia device! A random day, all the sudden didn't feel well, decided to take my vitals, arrhythmia showed up. Called my doctor, got an appointment the very next day, luckily I had an implanted defibrillator by then because VTach showed up!

Since then, I've had several "blips" of VTach, and other arrhythmias, some benign, but with beta blockers and my ICD/pacemaker, I've been doing quite well, thankfully!

I was diagnosed with genetic hypertrophic cardiomyopathy. This causes the VTach, which in turn can cause VFib, which can cause cardiac arrest, all in a matter of seconds! Thankfully I've never been shocked, just paced, but am grateful I have my device if I ever do need a shock!

I certainly hope you are healthy as a horse and were just misdiagnosed, but I really would get another professional, medical opinion before I felt comfortable with that diagnosis.

Best wishes to you.

TracyAdmin profile image
TracyAdminPartnerArrhythmiaAlliance

Thank you for sharing with all the Members. I wish you well in your continuing recovery.

What a lovely explanatory post Tess4! You did for us what maybe others should have done for you in terms of a good explanation. But all's well that ends well and it's terrific news that actually there's nothing of significance wrong. I think that feeling of dissatisfaction over diagnoses is a common theme when it comes to matters of the heart's electrics! It would be dreadful to say 'glad you are going', but you are going for the best possible reason, so it is actually a good thing! And how kind to let everyone know why!

lindajanevernon profile image
lindajanevernon

Hi I had my procedure done 4 days ago and feel so much better I was diagnosed with WPWS and a birth defect this is all fixed now not a nice procedure but so so worth it good luck

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