Hi, wondered if anyone had been diagnosed with an autoimmune condition (like Lupus Sjogrens or Rheumatoid Arthritis) and also had SVT and if so, whether offered different treatment/medication?
Thanks..
Hi, wondered if anyone had been diagnosed with an autoimmune condition (like Lupus Sjogrens or Rheumatoid Arthritis) and also had SVT and if so, whether offered different treatment/medication?
Thanks..
Hi I have SVT, Couplets and Sjogren's. In my case the Arrythmias was first then after a long time a plethora of different things and then the long slog of all the symptoms and blood tests and lip biopsy as well as skin biopsy due to the almost persistent rashes on my back which was first diagnosed as Urticarial Vasculitis and then Jessners Lymphocytic infiltration and my dermatologist is convinced that there is another C.T.D showing itself just not showing up in the blood tests yet but then they have already diagnosed me with sero-negative Sjogren's because of the borderline blood tests and inconclusive lip biopsy.
Are you going through the process of bloods and biopsies as well or have you been given a diagnosis?
Hope you are keeping well.
Good luck.
X
Hi, yes, I have been diagnosed with Sjogrens (and SLE) and probable Antiphospholipid Antibody syndrome. The SVT has emerged recently but I have a strong suspicion that it is linked to CTD....in my case anyway. For info, I was diagnosed with clinical symptoms and Schirmer test for Sjogrens.
Not surprised to read it has been a long slog... difficult to diagnose anything when symptoms do not show up at the same time!
Hope all well with you at the moment.