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Arrhythmia Alliance
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SVT and Ectopics - anxiety or something worse?

Hi everyone,

I will try not to bore you too much with my story I promise. When I was 16 I went to the GP with issues with my heart and they said they could hear a murmur. I had years of testing and being told I will grow out of it.. it’s benign etc.

It was only when I was admitted to hospital July 2016 as I nearly passed out after a bad episode that they began to pay attention.

I had SVT (highest speed clocked was 286bpm wearing a loop recorder) and ectopics and honestly I have had every test under the sun!

I had an ablation done in March 2017 and since then I have had no SVT which is great! But I do get a hell of a lot of ectopic beats. This has no doubt given me quite bad health anxiety and things but I can’t help feel there is something more sinister at play.

I am 25 now and a dad to a 17 month old and she is my world, so to think one day I may just drop dead that makes my anxiety ten times worse! Sometimes I get horrendous anxiety being alone with her because I can’t stop thinking if I die she will be alone until someone comes round, stupid I know.

I have been to A&E so many times and each time my vitals are fine, nothing in my bloods to indicate stress and they send me home, at this point they only check my blood pressure now.

I just want to know if anyone else has the same and if they have found a good way to cope! The cardiologist tells me it’s benign and to ignore them but it’s so easy to say that! I find them really debilitating and scary, I wish I could just take a tablet and never feel them again.

Quite recently I have started to have intense dizzy spells, feelings of nausea, and pain in my chest straight through to my back.

Any advice or help would be greatly appreciated.

Thanks.

17 Replies
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I have excatly wat u describe and have been told the same deal with them ther no harm..easy for them to say tht I feel 4 u I really do..

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It’s so refreshing to know I’m not the only one!

It is easy for them to say when you literally feel like your heart is failing, it’s like someone squeezes my heart and lets it go!

I used to be really active I ran all the time and I was a boxer but now I’m scared to push myself just in case...

I’m left living in fear really, I just want to be normal again

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Ye it's feels like ur heart is been squeezed and struggling to beat but them docs won't listen..just keep saying anxiety anxiety I do say can't some1 with anxiety have an illness or is it to easy 4 them just to say tht.. really annoys me..and I'm the same I won't push myself hard to do anything cause I'm scared tey might cum ther so frightening..I just started magnesium taurte to see if any gud if u YouTube them uwill hear of alot of people taking them tht have ectopics and seem to help them so I'm gona giv them a bash nothing to lose..

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Exactly!

I will definitely check that out thank you.

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No problem let me no how u get on I just started them today...take care of urslf

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You too, thank you for this

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No problem Tom ur not alone and I'm sure there more just like us...😀

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Hello! I hear you & sympathise I was diagnosed SVT at 35 had ablation 45 like you March 2017 been a wreck since! No episodes of SVT so docs believe I’m cured! Should be ecstatic! NOT! Terrified reoccurring chest pain/twinges/tightness shooting pain/panic/fear/anxiety call it what you 5 visits to A&E hate it! l would rather go back to living with SVT than all this pain & not knowing what if!! Take comfort that you are not alone & use this forum for help & support how anyone else is supposed to understand when they have never even experienced anything similar I will never know!😢

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This is exactly the same as me! All the little pains and pulls and strains it’s horrific! Joining this forum was one of the best things I’ve done just knowing I’m not alone in this! It is clearly a much bigger and wider thing than I first thought!

Well I’m going back to cardiology next month to hopefully get some answers so I will provide updates as I go!

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Yes I’m back with another cardiologist in July for 2nd opinion 1st discharged me like I was a problem! Anxiety is doing this to you not your heart! How can you ever get your head around chest pain not being serious I will never know! At least when I had SVT I knew what it was & to add insult to injury I have cysts in my left breast also just to add to the pain!

Yes keep us informed if your progress & hope things settle down I’ve also been using magnesium taurate & seems to help!😀

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Yeah that’s why I’m back to see if anything is underlying!

Oh no! Sorry to hear that! Cysts are rife in my family so I feel your pain!

I have heard about this magnesium taurate... May have to give it a go!

Keep me informed with how you get on too!

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Same here, lived with them all my life but I,m still here at 71,it has affected my life but I worked and brought up 3 children. I was offered an ablation, I didn,t want my heart messed with, I do have some scary moments when my heart pauses, I also have a mitral valve leak.

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It’s good to know you have put up with this for so long and it’s not held you back! It does hold me back but I thinks it’s because of my anxiety more than anything else

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I had a similar thing, it’s like a vicious circle and the stress increased the AF/SVT. They put me on a low dose anti depressant and it made a lot of difference.

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Thanks Linda, I am hoping that is the resolution for me too! Just some mild tablet or some mystery thing that will prevent me from feeling these symptoms anymore

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I haven’t been diagnosed with SVT but last year I started waking up with a heart rate that would range from 130-180 and horrid PVC’s. I thought I was dying. Went through every test, wore monitors.. they said I was always in sinus rhythm and just had a couple PVC’s sometimes. I still get PVCs at least once daily. It scares me to death! Twice in the last year I have experienced a “PVC Storm” where I get multiple PVCs that seem like they are every other beat. So it sends me in a panic and makes everything 10 times worse. And every time I get to the ER, it stops of course! They keep telling me it’s my anxiety it it’s horrible to live with. I wouldn’t wish it on anyone. It has really ruined my quality of life. I never want to leave me house in fear of something happening, I always carry a heart rate monitor and a BP cuff. It’s the worst!

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Hi thank you for sharing.

I completely understand how you feel I’ve lived it for the best part of half my life so far and I agree it’s not nice and I wouldn’t wish it on anyone either.

You sound very similar to me and after much research I have found the facts relating to heart disease and it helped a lot, I still stuffed daily, PVC pain in chest and arms, intense dizziness spells but you know I got so sick of waiting I took action and did something I never thought I would be able and that was start running again... alone.. and I felt so good after it mate!

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