Hello Everyone. I have been a long time lurker for awhile, however I have hit a wall and desperately need the advice of those who have been through this.
I am a 32 year old female. No heart disease. Perfectly healthy. A little background--My SVT started in my adolescence with episodes of racing heart that no one could explain. In fact, for a long time, I was told I had anxiety. These episodes faded during my high school and college years and returned with a vengeance nearing my mid-twenties. One morning I simply rolled out of bed and that typical ka-thump, THUMP triggered and my heart took off at 245 bpm. I was rushed to the ER and finally, after 25 years, was able to catch this phenomenon on an ECG. SVT. I was given a shot of aeodesine which broke the arrhythmia. I was put on 25 mg metroprolol succ er, which seemed to control the episodes for almost three years.
Fast forward to this past year. I had my first ablation in May (typical adult AVNRT), and sadly I had another episode a week after and then six weeks after. Both were converted easily and felt much slower. Clearly a pathway was missed and I ended up back for a second ablation in November. The EP had to get close to the AV node to make the burn, but said he was unable to induce the arrhythmia after. Both times he could easily trigger them. Like clockwork, a week later I was in sustained SVT for 30 seconds or less using the valsalva maneuver to correct. Two weeks after that (three weeks post ablation, last night) I was sitting in the car on the way to a holiday party and here we go, 200 bpm and none of my usual tricks worked. I ended up in the ER, thankfully captured on the ECG for my EP, and was corrected using Cardizem (so much easier than aeodesine).
When I called my EP after the second ablation, first incident, I was told this is common after the procedure for 3-4 weeks. I just have this nagging feeling something is wrong. I cannot tolerate another failure. I have been suffering from anxiety since this on-set as a child, and the thought of a 100% fix was too tempting. I fear that I will have to live with this for the rest of my life or that I have now made this worse by trying the ablations. Before them I was having episodes every year or three. After the first ablation I was experiencing them within months of each other. After the second I am experiencing them every few weeks. I am devastated. The whole point of coming off the beta blocker was to have a child medicine-free and to ease my worries when traveling/away from an ER.
Living with this condition is horrible. I am constantly worried if I am not near a hospital or in a public space that if it occurs I will need to immediately leave. It is an awful way to live your life.
I hope someone out there can relate. I really need to hear I am not alone.