SVT : Hi, i was diagnosed with Svt this... - Arrhythmia Alliance

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SVT

louise-b
louise-b

Hi, i was diagnosed with Svt this year which came as a shock, i have undergone one Ablation which at the time was a success.

A little while after that i noticed some of the old symptoms again, i have been put on beta-blockers and i am now awaiting Cryoablation.

11 Replies
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I am the same, I had my ablation last September at Leeds General Infirmary, I did not have cryogenic though. After a few months of being SVT free, my symptoms also came back. I went to see my EP and he arranged a 7 day holster test. This showed that the SVT had returned and I am now on the waiting list for my 2nd ablation. I have been in A&E twice this year, but it is not as bad as it was the first time. I have hope that my EP Lee Graham will get it all this time. Good luck with yours.

louise-b
louise-b in reply to Judygb

I hope that your op date comes soon, and that everything goes well with it!!!

I have everything crossed for my cryo as I was also told I may need a pacemaker fitted if the cryo doesn't work, but I do have faith in my surgeon he was amazing so kind and understanding in fact all the doctors and nurses at Southampton general have been brilliant to me.

Just the thought of a pacemaker does worry me..

Thank you so much for getting in touch and sharing your story I wish you all the best for the future....

I had symptoms for over a year of svt from Wolf Parkinson White syndrome, HR of 210 lasting for 45 mins. Saw cardiologist and put on waiting list for ablation. I dropped all caffeine related things and exercise, 5 times a week and diet. Now only get 10-20 seconds 1-2 a week. Reading about the svt returning after an ablation really puts me off having it done.

louise-b
louise-b in reply to kevrd

When I had my surgery I was told due to my being so close to the centre of the heart they would do as much as they could but it might come back, after surgery I felt fine and everything was going well for a while but then it did come back hence they are going to try cryo but have been told I may need a pacemaker fitted which does worry me.

I can understand how you feel as I do fill the same about more surgery but just be guided by your cardiologist

I really hope everything works out for you...

I hope that your op date comes soon, and that everything goes well with it!!!

I have everything crossed for my cryo as I was also told I may need a pacemaker fitted if the cryo doesn't work, but I do have faith in my surgeon he was amazing so kind and understanding in fact all the doctors and nurses at Southampton general have been brilliant to me.

Just the thought of a pacemaker does worry me..

Thank you so much for getting in touch and sharing your story I wish you all the best for the future....

Hi louise-b!

I am thinking about you with this cryo coming and possible pacemaker...it took me really a year to get used to mine...a CRT-D biventricular Medtronic cardiacresynchronisation therapy-defibrillator and I'm 100% paced...which I surely don't notice. I have Anti-tachycardia protocols in place and the Protecta model I have doesn't just shock you willy-nilly so I praise God every day I have it (4 years now!) Just hang in there and take it a day at a time! You will have a good ablation! Then your doctors will know what's best...they will be able to tell if if they get a negative study they can't get the little bugger that's causing the problem. If you get a pacemaker consider yourself blessed! A pacemaker is a gift...it may take a little while to get used to it and sometimes they have to reprogram it and get the settings right, but it could save your life! Think of that! And your surgeon is brilliant and you have faith in him! That's more than half the battle! praying and keep us posted!

louise-b
louise-b in reply to PattiJay

Sorry for my delay in replying, thank you so much for getting in touch.

Hearing your story has given me faith and reassured me so much.

I now have my op date in September and am counting down the days and will be keeping everything crossed.

Thank you so much again for your advice x

PattiJay
PattiJay in reply to louise-b

Hi louise-b!

Every day you are in my prayers! You must be filled with so many questions! You are of course hoping for the best with the Cryo! I've heard that is the best! My crazy ablation which was epic fail wasn't that. But whatever. Now that I have 100% pacing I try not to think about it and I think about that mysterious divide of before/after the heart device. Again, I feel as if I was so stubborn and not getting it about the device that it WAS going to happen, and it ended up happening FAST. So I will be here for you like all of your new friends here who got pacemakers to tell you about it IF the time comes. I believe in hoping for the best that your SVTs will go away with the CRYO and that your recovery will be normal and speedy. SVTs are tricky and we just wanna get rid of them, and the fact that your doctor has a working Plan A and Plan B gives ME such JOY (and I don't even live in the UK! I'm in the States by golly!) you have no idea! Is it OK if I say CHEERIO and pls keep in touch about this? Every day if you want? Keep your lovely positive spirit and know that the best is yet to be!!!

louise-b
louise-b in reply to PattiJay

hi pattiejay, i really cant thank you enough for your kind words and support!

i will keep in touch and let you know how i get on, but i have to admit i feel so much reassured since you have been in contact!

with love and blessing and a happy and healthy future to you x

@louise-b It takes more than 13 days to be normal after an ablation. Mine took 8 months to be completely in normal sinus rhythm all the time. Also, after the ablation, if your magnesium level goes too low--you will go into abnormal sinus rhythm. this happened to my in the hospital and the ep had blood work done, which showed low magnesium and low potassium--he gave me an iv of magnesium sulfate and 2 bananas toeat for the potassium, Medications you are using deplete the body of magnesium, potassium and trace minerals. Magnesium deficiency is one of the cases of afib.

louise-b
louise-b in reply to traveler65

hi, that's really interesting thank you so much

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