pheyntoin

[ricozoe]

ive been waiting to chnge frm pheyntion to keppra but need to gt dr to tell me how. my nw dr hasnt gt my records yet.i want to cut dwn on dosage n thn come off all of it. as i dnt thnk i need it anymore.and side effects r bad . ive been on these fr over 6 mnths.would it be safe to stop gradually.

[brighton88]

I found out a long time ago that I could not trust the NHS or any part of it to keep my records up to date, so I have my own record system, every time I see a doctor I ask for a report to be sent to me, same as when I go into hospital

[Hidden in reply to brighton88]

I also found this out, the neurosurgeons omitted that I had had bleeding in the brain in the summary discharge note, consequently noone including myself or my family knew about the injury in the brain and I wasn't discharged 1 week later without being offered therapy! It took the diligent investigation of my father to correct the medical records. If it weren't for that, doctors would still be assuming my brain is uninjured!

[ricozoe in reply to Hidden]

glad u father srted it fr you.

[ricozoe in reply to brighton88]

thnks fr ur replygood idea il tel my dghtr in a min wen she rings me or il forget

[Hidden]

I was on phenytoin for approximately 6 months after my injury, I had two seizures at the time of the injury and since I hadn't had any seizures during that time, the consultant decided that it was safe to stop taking them. I haven't had a seizure since.

[ricozoe in reply to Hidden]

oh good news thankyou.did u stop taking them or cut down first

[Hidden in reply to ricozoe]

On the advice of the consultant I had the dose reduced over a several weeks or even months, I can't remember it's been 12 years. You should probably see a consultant for advice, I wouldn't just stop taking them it might be dangerous.

[ricozoe in reply to Hidden]

ok thanks

[Hidden in reply to ricozoe]

Ur welcome