craniotomy

[buzzard]

hello all,

my partner had a middle cerebral artery SAH with clipping & craniotomy in april 2010.

we are members of headway and have used 2 other forums - all of which have helped with advice and support no end but we are still looking for "someone like him "

[Drusilla]

I am....how can I help..?

[buzzard in reply to Drusilla]

hello drusilla,

thank you so much for getting back to us. the only thought we have now is "wow".

its overwelming.

the only other time ive felt like this was 20 years ago when i was told i was expecting twins ! - we are a bit stunned

jeff has been supported by the lovely members of our local headway group and knows several people who have had SAHs but all have been coiled.

he had his SAH on april fools day 2010. i was told by 2 doctors that he had a stomach bug, not happy with this i called an ambulance. they only took him to hospital as he had bumped his head several days before hand. at the local hospital it was a struggle but eventually a CT revealled all and he was transferred to hurstwood park for his operation.

jeff still has a lot of problems with his bone flap moving. this seems to be made worse by stress, when he's tired and air pressure.

when i told him someone had replied and at last we had found someone "like him " - like me his initial reaction has been "wow " then "i am not alone. i'm not different ( there are others) i wish i could just talk to them here"

its strange but after 2+ years of looking when we thought about what we wanted to say / ask neither of us could think !

at the mo we are just trying to process the fact that at last jeff has found someone who understands what it is to have had an SAH ,clipping and a craniotomy

our best wishes to you

[Drusilla]

Bless you both....I had mine in 2007..my story is quite horrific and a big thumbs down to the NHS who it seems tried to kill me off several times...lol...firstly the ambulance staff told my son I was drunk...(i dont drink) they also told me I had no business calling 999 for a head ache...I was then told it was cluster head aches and was about to be sent home with paracetamol when a young doctor stepped in and said they think they should do a third LP.....40 mins later I was in Oxford having had a police escort .... induced coma for 11 days before my surgery because of the mistakes that stoke had made ...I had my surgery the day after my sons 16th birthday....my younger son was just 9..my daughter and my grand children were in St Lucia on holiday ....I didnt think it could get worse than that....but it did...but hey that was then and this is now...I am in my 5th year of being a brain injury survivor... I have been made a Grandma twice over since then ,I have good and bad days....tiredness gets me down..my mood swings piss me off....so God only knows how my loved ones put up with me...But if I can help just one family through the SAH mine field of recovery then I am a happy teddy.....Loads 'a' love

[rainbowsend]

I was clipped in 2010 too, my unruptured anni was clipped with 2 clips in June so I am almost 2.5 years post op. Unusually my main problems are caused by suffering vaso spasms on three occasions, during, immediately after & 10 days post op.

I found my local Headway excellent but now they have no funding and are not running the same courses I found so useful

[Bodygemz]

My ruptured aneurysm was clipped back in 87, when I was just 12 years old. Mine was a horror story too. Mum had taken me to the docs for years with headaches and been fobbed off before being diagnosed with depression. But worst of all was rupture day-mothering Sunday of all days. Waking up paralysed down my left side my ever caring gp accused me of putting it on to get attention and referred me to the local hospital for a psychiatric assessment. Luckily there they took me seriously and sent me to London for further investigation and I was able to begin my recovery with surgery. Now 26 years on I'm doing good, I have some left side weakness, get easily tired and stumble over words but in all life is good