I recently joined a practitioner workshop for post concussion syndrome and found it really helpful to understand my issues, potential causes and where I should look for help. Link below.
It also stated, nervous system dysfunction should be one of the first tests as if this isn’t fixed it will prevent vestibular physio etc to fully work which I think is what has happened to me.
below is the workshop in Facebook link, company is Complete Concussion Management based in Canada. You may have seen their YouTube videos. After the workshop and a few days later I was then given a free trial which goes into more detail
I tried a post concussion course based in Canada, but I couldn’t access the Buffalo treadmill, as my diagnosis was late ( I didn’t know what it was until half a year later, so I never got the concussion checked). I missed out on everything like the above. I’m still with symptoms 3 years later. I’m not sure I’ll ever recover. The reason I never went to hospital was because I didn’t pass out. I didn’t know you could get a concussion and not pass out. And I was on holiday. I feel so strongly that we all need to know that just because you don’t pass out doesn’t mean you don’t have concussion. Why don’t we know this? I went down with migraines from then on… but again didn’t know what was causing the migraines. I’ll never get my life back now.
Yes, I only knew about the not passing out thing with concussion / MTBI from having one previously where the symptoms only lasted a couple of weeks. Plus the symptoms don't start all at once, there's a cascade effect over a few days.
I know you've got that awful chronic headache Rosebud, have you ever had cervicogenic headache from the nerves at the base of your skull, oculomotor and vestibular issues ruled out or treated? Plus the Buffalo treadmill protocol can rehabilitate your autonomic nervous system byb exercising at a sub symptomatic threshold and building up. All contribute to chronic headache post concussion.
I agree, my frustration is that I have never been offered anything by my doctor or the two neurologists I have seen. I don’t have health insurance and I have spent so so much money on private Botox, Vydura, private neurogists, chiropractors, physio and I honestly don’t know how to access anything, not even a neuro psychologist. I feel so badly let down by the NHS. The first appointment was for a year’s time and I had a migraine that never went away and life still is hell. Sorry to rant, but how do you access any post concussion protocols and is it now too late anyway?
Hi Juventini, it was exactly this webinar, I did the course but gave up. For a start Dr Cameron didn’t believe in chronic migraine and then the guy who discusses food didn’t try to help when I emailed to say follow his diet because I had gastroparesis. They tend to refer you to a local naturopath. Finally, they said I had to be doing diet, meditation, exercise, and various other therapy all at once for it to work. So I gave up..
oh, sorry to hear it wasn’t helpful. For me, it’s helped me understand more and also given me more hope the cardiologist next month will help confirm or rule out dystonomia.
I didn’t start any treatment until after two months and this was then only basic vestibular physio and occupational health for fatigue management.
I saw on YouTube about the buffalo method so tried exercise but overdone it and triggered symptoms instantly and hugely. I was then show by the nhs this method but 105 hear rate was my level and I breached this just walking etc but when I told them no further help was given.
I’ve stagnated on the vestibular exercises since April. Stuck on the brock string.
I read about the brain diet, but it’s hard as I can’t multi task and too cook new recipes isn’t possible. So with just eating basic food in the oven or making pasta which should be avoided I’ve struggled, even without a medical issue around food.
My neck has also never been looked at, the vestibular physio said I have neck propreception and I think stiff c1 and c2 and did manipulation twice but then I was discharged saying they had done everything they could.
So I’ve just been trying to research as to use my private insurance I need referrals and only had a set limit for consultations so didn’t want to waste on areas not needed. But solicitor has just organised a neurologist for next month so I’m hopeful again.
My accident was August 2023 so it’s been a long journey!
Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.
Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.
UK Concussion Guidelines for Grassroots Sport
minor concussion
Rehab post concussion
Concussion 
