memory and processing

[Dann2]

I’m really worried about my memory and not processing the world around me properly… it’s scary. I have brain fog (as well as visual snow/glare) all the time, and just dont know how to improve this.

[Beachlovingkiwi]

hi, have you tried yoga, meditation or an osteopath ? I swear by the osteopath - helps so much with the brain fog and cloudiness. He also recommended lions mane capsules and these worked on day two to help clear the head. 🤞🤞 for ya

[gr33nmind]

Try some Methylcobalamine B12, or MB12. There are two popular forms of B12, Cyanocobalamin CB12 & Methylcobalamine MB12. You don't want the common form Cyanocobalamin, because this is cheaply derived from Cyanide . Methylcobalamine is pink to red. It is only naturally found in animal red blood cells, and there is also a little in seaweed. Seaweed is kind of a cross between an animal and a plant. If you are vegan, you kind of have to take take this supplement.

Please ask your doctor before trying, for any potential side effects before using. Still MB12 is a powerful antioxidant that targets the brain. If you have an injury oxidants form around dead neurons, and can cause you brain fog, even more than the damaged neurons themselves do. Basically the oxidants block signals. Some scientists think that when when early man first started hunting, our brains improved because of the MB12 found in animal meat.

I am guessing that you live in the UK, so Cannabis use is probably not possible, but THC is another even more powerful antioxidant you can use.

Whenever I feel a little spacey, MB12 tablets will help clear away my brain fog in only a few minutes. Make sure you look for a kind that is dissolvable. I'lll put one under my tongue, and the antioxidant travels up my facial nerve directly to my brain. Like any supplement you don't want to over use, because too much B12 can accumulate in your liver, but used sparingly it can help clear brain fog.

[Nafnaf87 in reply to gr33nmind]

I have reported this post as potentially dangerous. Getting medication without advice from GP or seeing a pharmacist from Amazon is not sensible.

[gr33nmind in reply to Nafnaf87]

Thanx so much for that. MB12 is not medication. It is a legal form of B12, that has helped me so much. 30 years ago I froze to death over 6 hours. I clinically died for a half an hour. I had severe hypoxia, and couldn’t remember a word for more than 20 seconds. I also couldn’t walk. Today I am a 600 level chess player, and have run a 27 minute 5K. This person had asked for help removing brain fog. I offered what had helped me. A decade ago I was taking 4 medications, and probably still would be if my insurance still paid for them. They stopped paying for them, but honestly it was probably the best thing that could have occurred, because I had spent every day in a confused haze. Are you employed by a pharmaceutical company?

[Nafnaf87 in reply to gr33nmind]

Thank you for your explanation. I am so sorry to hear of your near-death experience and even more pleased to hear of your recovery. Your original post could maybe have been better worded, I read it several times before reporting and have again, I still think it is possibly quite dangerous.

No I am not a pharma rep/employee, just like most of us here trying to find the best way to maximum recovery post severe brain injury/damage.

Best wishes to you gr33

Michael

[gr33nmind in reply to Nafnaf87]

When a person first recommended MB12 to me, they explained how their husband had a terrible injury, and after using it only one time within 3 minutes both her husband and her could tell that it had removed his existing brain fog. She explained that she could immediately tell, just by looking in his eyes, that he was back. Now my experience wasn’t that profound (everyone’s injury is different,) but I will use an MB12 tablet under my tongue before a chess game, or a family gathering, or something else that is stressful, and I do notice a clearing in my mind.

As far a danger goes, it can cause some liver issues, if you are constantly using it. That is why I mentioned this. Still you can die from using too much of anything. Hyperhydration is a poisoning you can get from drinking too much water. My family doctor had noticed some elevated B12 levels, but told me that if it was helping, keep using it. He would just keep an eye on my bloodwork. Still since it is water soluble, most of it will be just be expelled in your urine. Like any drug or supplement always ask your physician for advice before trying. I am sorry for forgetting to mention this at first.

Still it has been far more beneficial then any pharmacological I have *ever* taken. 15 years ago, I was on so many pills, and was extremely dazed. I actually had a fall, when walking to a volunteer library job, where I badly broke my nose, and sustained a second TBI. That day I vowed to get off it all. I suppose the fall, and change in my insurance was a kind of blessing. Today at age 53, other than the occasional MB12 tab, or a half milligram of CBD oil, I am completely vitamin and drug free.

[Nafnaf87 in reply to gr33nmind]

Pleased to hear that, at 58 I refused to take the stuff the Neurologist prescribed because it didn't make any difference, apart from making me feel like I was on a roller-coaster and utterly miserable. As far as is possible I leave my body to sort itself out though I do recognise occasionally it needs a hand to sort out a headache or some such misfortune.

[gr33nmind in reply to Nafnaf87]

Some headaches are actually welcomed by me. Mild dull headaches I get that are isolated to the less injured side of my brain I call healing headaces. When I am having one I notice increased cognition, during and after. I’m not exactly sure why, but I think that I get them because of neurogenesis. Unfortunately 30 years on, I don't get them often anymore.

[Nafnaf87 in reply to gr33nmind]

I consider you lucky to not get headaches - I just have a headache of varying level of annoyance after 25 years. I tried to get them to take notice for years and finally cornered the Neurologist into doing something in the summer. Not good and never again, the headache can just be ignored apart from the odd occasion when an OTC med will just give a hand.

One of the biggest problems with this brain injury lark is getting help - don't look like a loon, according to people in my orbit I present well so therefore I'm normal, right. I make a huge effort and tell them so but they don't believe me .... or so it would seem.

[gr33nmind in reply to Nafnaf87]

I think headaches must have alot to do do at the specific part of the brain you injured. Still despite my hypoxia being global, I rarely get them, and I don't know why. I actually used to get them a lot when I took an SSRI, but since stopping this med a decade ago, headaches are rare occurance for me. A couple of family members get migraines, and I can see the struggle they go through, so I can understand how problematic they can be.

[Teazymaid]

hi Dan I haven’t tried to use anything other than Just putting up with it 🫤 it’s definitely improving as I can remember where I parked my car now ( I used to take photos of the road I had parked in with the street name ) I just kept /keep exercising my brain by doing as much as I can like a year ago I couldn’t cast on 50 stitches to knit my new grandson a teddy but after several times of trying I managed it .. that was the biggest piece .. my bloody mindedness and never giving up ( thank god I didn’t lose that bit of the old me) seemed to have helped .. I’m still not good with short term memory and struggle to find the right words sometimes .. this still is beyond frustrating at times along with other issues but I just keep going and think the more I try to do hopefully it will get better sue 🫤

[pinkvision]

Hi Dann

We've communicated before, I remember that your BI is due to a side effect of acne medication (accutane).

You are quite unique on this site because most of us have had a stroke or TBI and the causes are well documented as blood clots, acute tissue injury or axonal injuries.

It seems your injury is a disruption of gene processing sciencedirect.com/science/a...

As we all know the state of the health system is appalling so if you ask your GP to help you won't get anywhere or just get prescribed antidepressants.

It may be an idea to contact the person (Douglas Bremmer) who wrote the paper above, here's his Wiki page if you want to know more about him en.wikipedia.org/wiki/Doug_...

and here's his website dougbremner.com/

and facebook page facebook.com/jamesdouglasbr...

Email him or send a message on facebook (do both) and let him know you have been affected by accutane and ask him to recommend someone in the UK that you can contact for information and help.

You may get an answer or you may not, but the only way to find out is to reach out.

[Dann2 in reply to pinkvision]

thanks pinkvision. Discovering new things like this upsets me a lot as it’s highly likely that nothing can be done about my symptoms. But i may try and get in touch with him in case he does know someone in the uk i can talk to. But it’s a horrible situation that i don’t want to be in.

[pinkvision in reply to Dann2]

Hi, yep, finding and facing realities is a bit of a double edged sword but, paradoxically once you know it and can see it you can move forward. That's when meditation and yoga as Beachlovingkiwi suggests will come in really handy.

No matter what happens keep us all informed because we are all here for you.

[Dann2 in reply to pinkvision]

yes, facing realities is AWFUL. it’s been a gut punch today and i’m feeling very low tonight. No one to talk to about this, totally on my own. A dead end and very upsetting situation. Thumbs down to everything.

[pinkvision in reply to Dann2]

You may be on your own physically, many people are, but you can connect to people here. Keep posting about your journey with the effects of accutane and your new journey in finding out about it and making contacts and connections to get to the bottom of what you can do. You won't be the only one suffering from this and writing about it may encourage others to engage and come forward.

[skydivesurvivor]

y lucky! Took me several years to even be aware of my position!! Unaware as to how much of the old me had been lost! Got the chance to redeveloped my personality! She’d the bad & hone the better! Think am now a nicer person? Emotionally numb though, no desire to relearn them as depression, anxiety is a down side?! Just live with what we got n be thankful?

[Letsrock]

Hi Dann, yes I have the same but have hit better by using EMDS eye movement desensitisation exercises. Remember I gave them before? Movement your eyes left and then right keeping head still 10 times (5eacj way), then do the same moving your eyes up and down then repeat them all with moving your head as well. Then turn your head all the way round as far as possible and making eyes ho further round and same on other side and up and down. Then using your finger keep your head still and make your eyes follow your finger left, right, up and down 5 times. It works very quickly! Keep trying and do not give up. It might seem basic but easy exercises are the way forward to clear your brain fog and get eyes processing. Goodluck Dann and please try it?