hi guys, so this week coming I’ve been informed that I have to go for what they call a PIP “face to face” assessment, as i get mine for my Hydrocephalus. I’ve been receiving PIP ever since i was a child even going back to when it was known as DLA (Disability Living Allowance), and 5 years ago (as it’s reviewed every 5 years allegedly) I went through hell..
The clowns at DWP (I’m not going to hide my distain for them) did a face to face and the woman doing it told me “You look fine” and they tried to take away my PIP.. which then ultimately snowballed and got real nasty really quickly. Anyway to cut that story short, there was a lot of medical experts on my side and the judge awarded it me telling me I shouldn’t have had to go through all that
Fast forward 5 years and here we are again, although i am prepared and my wife is coming with me with all the previous evidence from Neurologists, my consultant at Southampton and SHINE Hydrocephalus.. I’m still uncomfortable and stressed about this. The judge was right last time I shouldn’t have to go through this and although it’s no until Wednesday it’s stressing me out. I’ve got to cope with my Hydrocephalus for the rest of my life and DLA is my main source of income, so without it I’m screwed. I just don’t want to go through what i went through last time, it really took its toll on me with the appeal, the waiting, the judges and courts etc it’s really not a nice experience and it destroyed me mentally last time.
Written by
RobertPicken87
To view profiles and participate in discussions please or .
I feel your pain. It is wrong that you should be reviewed when you have such a condition. I have just been told I have a review after my tbi and am dreading it to be honest...
Went for a face-to-face with the very nice Capita health professional 2 weeks ago. Got my local Headway group chairlady to tuck me under her arm and take me.
It was a bit like the dumb leading dumber but by the end of the hour the very nice health professional was worried about everything, particularly I might burn my and neighbours flatlets down while cooking myself some dinner.
I believe these things are supposed to take about 2 months to wander through the system so I was amazed to receive a text message within a week I have been awarded PIP .... sounds like some sort of gong doesn't it 😉
I don't understand all the queues we have to stand in, yesterday I got a message from Universal Credit I have an appointment in 10 days .... not sure whose arm I should be tucked under for this one.
It's tough I know, but I try very hard to reject the stress and treat it as a bit of a laugh .... helps being brain damaged I suppose 🤣
morning everyone just thought I’d send a quick update this morning now I’ve had some time to decompress and process everything.
It wasn’t a great experience and the “healthcare professional” didn’t even know what Hydrocephalus was🤦🏻♂️ and when my dad asked them if their case manager (who makes the decisions) was medically qualified, she said “I can’t give you an answer on that I’m afraid”.
Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.
Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.
PIP assessment
PIP finally 
PIP tribunal.
PIP assessment 
