How do I access help to get back into employment? - Headway

Headway

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How do I access help to get back into employment?

Godzilla73 profile image
14 Replies

Hello. I am new here, and not very good at navigating websites, so apologies if this question has already been asked and I just can't find the answer! I am 6 months into recovery from an acquired brain injury, of which seizures were a precursor, caused by adverse prescribed pharmaceutical effects. No longer suffering seizures and am off all medication (bar vitamins etc), but main ways chronic symptoms manifest themselves: dizziness, fatigue, cog fog, aversion to light and prolonged IT/screens contact, reduced ability to filter out peripheral sounds and conversations (hence I have to wear ear defenders all the time). On the very big plus side, and unlike so many sufferers, I don't suffer anxiety or depression - at least not to the extent that many people now seem to have. My symptoms manifest themselves mainly in physical ways. I am very keen to get back into the workplace, but I haven't worked for about 18 months. I am very nervous to apply for new jobs for a number of reasons: I don't actually know what my current capacity is- my previous jobs were middle-ranking civil service communications jobs, but I don't know if I have the stamina for it at the moment. Also, my self confidence has taken a rather big knock, and I have never worked since becoming disabled. Having said that, I think there would be significant benefits to me getting back into the workplace at some level. My question is: what sort of specialist support is there, either at a local level or nationally- for supporting me getting back into work? I am reluctant to make contact with government agencies, as ironically- (or perhaps because I have extensive experience of working for government agencies!) - I don't trust them to provide me with the sort of support I need. I'm keen to get back into a similar type of work to what I did before, perhaps at a more junior level, or even part time working. But I am also worried that if I put my CV in, a potential employer might think that I am overqualified for the job, compared to what I was doing previously. But I mainly need help in: (a) having an honest independent assessment of what I am capable of; (b) identifying supportive "brain injury friendly" employers, and (c) helping me have that initial conversation with potential employers about what my capabilities - and limits- are. For example, if I am in an open plan office environment, I can't imagine being able to function well with the peripheral visual and aural distractions that most people are able to tune out. Also, currently I need to lie down periodically throughout the day, and I am not sure of the ability of employers to be able to make reasonable adjustments to allow me to do this.

Thanks for reading to the end of this long ramble! I would appreciate any signposts, guidance or suggestions. If you do respond, please let me know if you are responding with a particular "official" capacity or in a personal capacity, as I have made the mistake, on other forums, of confusing layman's advice with expert advice! I value both, but I am not always very good at placing appropriate weight on different responses! To be honest, this has principally in the realm of "medication recommendations" in the past, so that probably isn't relevant here.

With love and best wishes to all fellow travellers, who go through the challenging and potentially traumatic experience of brain injury.

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Godzilla73 profile image
Godzilla73
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14 Replies
Painting-girl profile image
Painting-girl

Brilliant post Godzilla, setting out the challenges really clearly - wiill look forward to the answers with great interest 🌸

Godzilla73 profile image
Godzilla73 in reply to Painting-girl

How funny! I have just replied to a post to you! Our messages must have passed in the ether!

moo196 profile image
moo196

Remploy were fantastic when helping me with employment issues after my cvst. I highly recommend them.

Godzilla73 profile image
Godzilla73 in reply to moo196

Thank you, moo196! That is really good to know. I will get in touch with them.

👍

Cornishboxer2 profile image
Cornishboxer2

I totally empathise with you. I just had to give up my job as a head gardener after trying to hang in in there for sometime and realising I’m not allowing myself time to get better/try out different meds and treatments etc.. I am keen to start looking as soon as is sensible both fit financial and wellbeing reasons. I struggle like you to know what I can cope with sustainably. I can do very short bursts of work and can cope with screens a bit too but am unsure re retraining future career options.

Wishing you the best of luck with your recovery and endeavours!

Godzilla73 profile image
Godzilla73 in reply to Cornishboxer2

Thanks Cornishboxer2. Really sorry to hear that you had to give up your job as head gardener. If I had my time again, I would retrain in horticulture, it's always been a love of mine, but I never really made the career move. I hope you are able to find a way of getting an honest assessment of what opportunities are best for you going forward. Very best of luck. I will definitely check Evenbreak too, really appreciate the recommendation.

Cornishboxer2 profile image
Cornishboxer2

Look up Evenbreak - they advertise jobs from particularly disabled friendly employers.

Shreds profile image
Shreds

Hi, I recognise some of the issues you describe. The NHS funded “Working Win” sounds like it might be suitable if you can get on one of their trials. However a lot depends on funding and whether it is being run in your area. It is also time limited so they may be both full for the current tranche and there are no guarantees of a future run of the trial. Ask around about it. CItizens Advice should know as there is a link up to their service.

Tiredness and fatigue....I think many of us feel like a lie down in the middle of the day or at other times. Working from home is preferable for this as you can control your environment, but even that is difficult if you are used to a 9-5 office based job.

Best with your recovery.

Godzilla73 profile image
Godzilla73 in reply to Shreds

Thanks, Shreds- that's really helpful. I hadn't heard of "Working Win" before, and it sounds interesting, so I will do some research into them and what opportunities there are. I really appreciate you taking the time to reply to me. Very best wishes to you on your own recovery.

Shreds profile image
Shreds in reply to Godzilla73

I took part in the first tranche of the trial after a referral from my doc. Very useful to highlight positives and talk openly about business/work and other factors which could be constraints. Having a ‘business mentor’ with an understanding of services and opportunities that might be available as well as other organisations who could assist was certainly worthwhile. Shame it was only a twelve month limited trial. (And only 50% of applicants were offered one to one counselling). The placebo group were just sent leaflets and signposted elsewhere.

I recognise that by having a second tranche follow on for new applicants, the first trial must have been considered to have had some success.

Best of luck.

Shreds profile image
Shreds

Just checked it out and applications for the next tranche of Working Win close on 31st Jan. So if you want to try it, you will need to act very soon.

Godzilla73 profile image
Godzilla73 in reply to Shreds

That is so very kind of you, Shreds! Thank you! I really appreciate that update.

👍

Lulu_Lollipop profile image
Lulu_Lollipop

A very hopeful and interesting post. A well expressed one. I can't offer advice or help really, but I shall follow with interest. I'm in an uncertain situation myself currently. Recently dismissed from job of 34 years because of ill-health. I returned to that job after 2 years sick leave following brain surgery, but 11 months later I had a stroke at work and I was off sick again. I have very similar issues to you hence my job needed adjustments in my surroundings, but they didn't really understand and... well, here I am in limbo. Waiting for result of my application for medical retirement (rejected twice previously). I admire your positive and truthful post and I wish you all the very best xx

Hello Godzilla 73. I would recommend a volunteer job initially and a charity called United Response to help you back into work. Not sure if they cover your location but worth checking. Very much a person centred approach unlike some state run options. When you go back to work there will obviously be some things you can do and some you cant. Also though there will be some things you can do for short periods and infrequent periods that you may not do over a sustained period due to neurological fatigue. Take realistic steps forward. Good luck.

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