Clipping brain aneuresm

[maya72]

My operation was unsuccessful.

[Broken_Doll]

I am very sorry to hear that maya72. I honestly don’t know what I could say to help, or make you feel any better. But you will be in my thoughts!

Emma x

[cat3]

Sorry Maya I'm confused. Are you meaning your clipping from two years ago or have you had another op more recently ? I know you were having many issues from your clipping in 2017..... Forgive me if I've lost track but could you provide a few more details m'dear.

Cat x

[lcd8]

So sorry. Hope you're okay and all the best.

[Lulu_Lollipop]

So sorry to hear this. What went wrong? Do you know if it'll get sorted? I had my large aneurysm clipped in March 2017. Not really been checked since apart from an angiogram a few months later. In August this year I had a stroke at work. Off sick again.

[Alibongo60]

Hi maya, I like you had coiling of an aneurysm in 2012, it too failed and my aneurysm ruptured about 2015. I had further coiling inserted, and it worked for couple of years then last year it started to grow again it is now very large and causing problems with my brain stem,I had a scan few weeks ago, they are not sure if anything else can be done if it can it will only offer me up to five years extra time, so I can sympathise with you,I try not to dwell on it, but it’s very difficult and tiring,I wish you lots of luck and keep going love Alice xx

[Kathykathy1]

What do people mean their aneurysms are growing again I had coiling in a ruptured one 2015 I thought that was it finished, did not know they can grow again information please would be appreciated.

[Alibongo60 in reply to Kathykathy1]

Hi Kathy, sorry if my reply worried you, in most cases at the two year scan if everything is the same then there’s nothing to worry about, my surgeon said I can’t seem to get to that stage and they don’t know why that is, obviously with clipping the aneurysm is removed but with coiling it is filled with coils and in my case blood has been able to enter and it has grown again. Because of where mine is and the size they are not sure now if it is safer to leave, hope this reassures you lots of luck Alice xx

[Barnie100 in reply to Kathykathy1]

Hello Kathy I had the aneurysm coiled in 2016, along with a diverting valve and eventually I went home after two months in hospital. I, like you, didn’t know they could grow again, it’s worrying. I haven’t been checked at all, which I found a bit strange and really I’d like the reassurance of being checked and told everything’s ok. Do you get checked regularly?

[Kathykathy in reply to Barnie100]

Barnie...no like you I have been shocked at the lack of care, concern, information and checks. It seems if you do not have cancer these days everything is secondary money seems to be thrown at cancer, research, facilities, coping strategies,counselling anything you want to think of, Brain......it seems not.....coming from being told would not make it, in a coma on a ventilator and a brain op and in my case 2 eye haemorrhages as a consequence of pressure from ruptured anneuryism and then 2 eye ops, struggling to walk, talk and multiplicity of brain defects in this Life changing event and battled alone.The fears one lives through the mental and emotional struggles in a new flawed future, re learning functions etc. Has shocked me.In my case when the surgery was done was cast out of hospital no longer their concern.I asked to see a neurologist when asked why, was then told they are more about brain conditions and mine was a brain event so nothing happened. No one looks after any part of my care. I had one MRI scan after about a year after which I paid for myself as I'm traumatised, ptsd, and claustrophobic so had to find an open scanner to achieve it although for brain in a cage and locked in was not too open actually an unknown doctor looks at it writes to gp a few lines not even full findings and no one else to explain scan to me etc. And once again alone under no medical care or support adding to an already hard journey. So my sympathies to you I hope knowing you are not alone goes some way to help.

[Barnie100]

Thank you so much Kathy it really does help knowing I’m not on my own but I really would like an annual check. Quite often my head feels “full” and I get various pains in it. Any ideas to what that could be are very welcome xx

[Kathykathy]

I'm the same feel alot of pressure in head, shooting pains, nausea, even small trips in a car gives me motion sickness, ringing in ears, loss of smell, taste and some hearing, exhausted, anxious, ptsd, balance, walking you name it I have it.But I keep battling on trying to reach new goals. I do logical things like don't bend over so no rush of blood to my head where possible, live a very quiet steady life now, pace my day between mental physical and rest periods, I burn essential oils alot to help bug bust atmosphere and visitors albeit anyone with a bug is banned. Immune system seems shot. Pain killers of course. Guided visualisation s every day, mindfulness, and affirmations, remove stressful situations where possible, good food, rehabilitation exercise, and try keeping sinuses clear. Is your blood pressure under control as that affects head. It's s devils own game really but anytime you want to speak about it I think one can private message in site although not done.

[Barnie100 in reply to Kathykathy]

Thank you so much for your advice, it helps knowing I’m not alone. I’m on medication for high blood pressure, so, as far as I know, it’s under control. I seem to get the “full to bursting “ feeling when I’m busy at work or tired.

You are doing so well, you need to be proud of yourself. If you want to chat, please message me.

Have a good day. x