Happy New Year : I am hoping for the outcome from... - Headway

Headway

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Happy New Year

371960 profile image
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I am hoping for the outcome from being moved on to the esa support group soon, I'm awaiting a court date, this has been hanging over me for almost a year, and has definatley set me backwards in my recovery..has anybody else had a successful outcome, my Gp has provided a letter stating, that by leaving me in the work related group, would be detrimental to myself and others, in a workplace..how much more I can take kath x

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371960
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8 Replies

I waited 8 months up til late last year with no benefits at all,had support from a MH group,tribunal judge was very annoyed,was granted in 10 mins(support group,Dis premium aswell,as before). It's done to make u give up! DWP didn't even turn up,was in tears cos of stress it took going,cos thought DWP would turn up,& they do with me like on phone-wind me up so i start shouting!

As for PIP just got both parts from getting summary care records,& sending about 45+yrs worth of paperwork-never had PIP before,never even turned up for tribunal aswell-as thought i wouldn't get cos they just do physical related. Decision was based on letter why i couldn't go,& my 45+ yrs paperwork. Just remember all paperwork of medical notes that's relevant(most relevant letters up to about 10-more can go against u,as tribunal won't have time to read. Also try to get someone from an organisation to support u(tho not much supporters out there now!).

371960 profile image
371960 in reply to

Thank you jay for your reply, I am sorry to read you have also been through a similar situation as myself...I think it's unacceptable to be putting us through such anxiety/ stress for so long...I have been through the pip, and got refused...I have a rare disease called SREAT.steroid.responsive.encephalitis.autoimmune.thyroiditis...it started in 2016 with a stroke, followed by a grand Mal seizure just over 3months after, I was on life support for a few days, as they couldn't stop the seizure..2 months later I ended up in hospital again not knowing who I was..i had massive swelling on the brain, that responded to steroids, after numerous tests I was diagnosed with SREAT..I was left with some brain damage, I have made massive progress in the 2years since diagnosed..but I have been left with many cognition issues...esa have said that I am capable of doing some work lol..I'm not sure what..mandatory reconsideration came back although I had scored 15 points, they said I could still work to some degree..I'm now waiting for the court appeal date..I have been so low at times, stressing over it all, and coping with my disease, that is ongoing and progressive..sorry for the essay thank you Kath x

in reply to 371960

Thanx,there is thousands of us out there. Wow,sounds like u went thru some heavy health probs,the seizure sounded really serious aswell. Never heard of SREAT,sounds serious. That & cognitive things(especially neuro related) doesn't go down well with DWP & 'paid to fail people' contractors-anything they have no knowledge of is just ignored(all they harp on about in ESA is MH,cos they think all of it is temporary!),as for PIP the paperwork is stupid,as define 'very'! Thought PIP was just physical,but fiance knows a guy who went to PIP medical with 2 carers,he can't communicate unless he has tablet, he had an epilepsy seizure at it,wet himself,& they still gave him zero points! They give nearly everyone zero points to make u give up-i don't expect to get it after 2020,or even that deadline. As for ESA i was on the reduced amount until they stopped it,months later got premium & support group & been like that for last 3 yrs. First time i got zero points at ESA medical,that,the day before refused PIP first time,& MH team not helping me led me to A&E not being able to switch off suicidal thoughts,then cos i said i was gonna kill myself,was woken up & arrested at midnight after i went home,& held for about 36 hours on a charge cos they wouldn't put me in crisis suite(thanx to council fund MH in my city!),the charge was dropped as i was led in handcuffs to the court. I was told if i went to court there was no bail,i would have spent 3 months on remand,to also get acquitted! Police must get fed up with it-i will now longer deal with any MH team,or go to A&E if that happened again!

I dared them in a cell to section me,as know they couldn't hold me on made up charges!

371960 profile image
371960 in reply to

I am so sorry to read your post..I sympathise with you, I agree with all that you have said.. the system is so wrong, it doesn't understand complex conditions/diseases and chooses not to understand them...leaving many of us in helpless situations, as well as having to cope with our illnesses...I feel there is little help or support out there to help us fight our case, it really is a case of tick the boxes on the forms..it's not easy, I'm going through it, but stay strong, fight for what you are entitled to..thanks for you reply kath x

in reply to 371960

Thanx for ur replies,where's my manners!

Also fight for urs,it sounds like u deserve it,DWP,etc are b@stards.

I myself worked mostly from 95-til 2015,but only part time,i never see myself working full time. Sounds defeatist but last 3 yrs been harder to put up with demanding workplaces,& was only a cleaner most of that time!

Even voluntary work i seem to stop as soon as started,cos moods or the apathy kicks in again.

Last time i went in a jobcentre i shouted at them that they treat people like shit,seeing signs saying 'ur better off working' was the last straw! LOL

Showed them brain injury card,& they made out they cared,said they'd ring about ESA tribunal,& never got call. They just said anything to not embarrass themselves,cos was busy at the time.

371960 profile image
371960 in reply to

It's just absolutely shocking the way they treat people, it's pure ignorance on understanding or not understanding about complex conditions..I don't know why half of them choose to be working in such places, where people need help, as they have no compassion what so ever..keep fighting jay, we won't let the system treat us in this way kath x

in reply to 371960

Yeah,i don't know how anyone can work in any DWP related job-must be the type of people who tried to get me to lose temper thru primary/middle school(how i got second TBI!),they just got older! Very sad people

! I always stood up for people who got picked on at school-i'll never understand bullies.

Yeah,sometimes my determination pisses them off! And humour-which is hard to switch off,even at assessments(is an old coping thing!). LOL

Thanx for the replies Kath,Jason. x

daveeb profile image
daveeb

Oh back to my old favourite. After 4 refusals for PIP I applied for the tribunal and was given both parts by the Judge who was astounded by the refusals. I was only in the court for about 20mins and even the DWP representive gave me more points than the cockeyed people from Capita. Before the tribunal I could barely survive let alone live, but now things have changed fully. So, I'd definitely recommend the tribunal but make sure you turn up for it, because that can be used against you. Good luck, and keep up the fight. Dave

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