Russ : From coma to home, a miracle and blessing and im terrified.

[Angelia1234]

Russ is excelling in his in-patient rehab. He is expected to be discharged very soon. Home or nursing home. Its a catch 22. This entire journey actually. He will have some needs but im scared of how different things may be. I work and HAVE to. Im worried he'll need 24 hr care . they say probably for a couple months at least. I dont want to take him to a nursing home. Its all just overwelming. 4 months of roller coaster from hell. Dont get me wrong im excited to still have him! Its a miracle! But each stage is so stressful.

[Lindshh]

Hi, my husband came home two months ago after 5 months in hospital and I can’t pretend it’s not difficult. We have - at the moment - 3 personal assistants who are with him while I’m at work, he is in a wheelchair at the moment and is improving but it’s very slow and he does get very frustrated. I worry every day one of them is going to say that he’s too argumentative, demanding and we don’t want to work with him anymore.....The hospital didn’t want him to come home, but a nursing home would have been the worst place for him mentally. It’s tough, a roller-coaster of emotions, you desparately want your old life back, so it’s very hard to adapt. On a good day, I’m full of hope, on a bad day, it’s very overwhelming. Work is my relief, where I can be me and in control. You need to do what is right for both of you and accept any support that’s offered, be that friends, family or via the professionals. It gives you that bit of breathing space - this isn’t just his journey, it’s yours too. And........just deal with one day at a time. Hope all goes well.

[steve55]

my wife goes to work, she works with adults with learning disabilities, same as i did ( and the same home ) before my stroke.

i encourage her to go out and have her time, when we go out its very stressful for her because shes always looking for possible blow up points and there are a lot of them.

because i suffer from noise intollerance, we go to somewhere thats nice and peaceful and if that gets disturbed i blow.

if you decide to have him home, make sure you have his care package in place before hes discharged and dont expect it to be the same russ.

please feel free to ask me any questions. good luck

stevex

[Justine43]

Hopefully he will settle into home life well and you can get help. My daughter has been home over 2 years and is severely disabled but I wouldn't Have her anywhere else. Routine is the key

Wishing you well.