After symptoms? Do they go away?

[Cornishwaves247]

Ok you lovely people with experience, do you find your after symptoms go away? Mine are getting better or should I say more manageable but I still have them. It's starting to make me depressed! My brain feels like it's constantly moving or being pulled or spun, this then has a referred inner body moving sensation. It's always changing sensation but never goes. The brain is like the bubble in the water of a spirit level. I also can't walk independently, have no perspective on my vision along with double vision, poor balance, missing some taste buds to name a few... I have high hopes that things will improve as they have done at a very slow pace... what are your experiences on this? Thanks

[ErinSAH]

Hi,

I’m 5 years post my BI, I still have most if not all of my symptoms but they have all got better with time. Everything is less severe and less frequent, iv also learnt a lot about management of triggers and listening to my brain, especially with rest. It just all takes a long long time, a lot of practice, resilience and patience in bucket loads.

I do still think I’m getting better though, even 5 years on and I’m not sure the journey ever stops. Which I think is good, I don’t ever want to stop learning and experiencing new things 😊

Good luck with your recovery, everything will get better with time 😊

[19KMcG87 in reply to ErinSAH]

I second ErinSAH’s post, being a ABI vet of 18 years (I was 12 when it happened.) of course with the natural process off aging I got better, more able and things definitely got less painful with time and plenty of therapy. Now thankfully I’m at the point where unless you know me, spend a long time with me then it’s hard to fathom I’m so ...injured, a good thing but a bad thing at the same time!

Best of luck to you, I’m hoping you have sufficient support around you but yes feel free to post/message with any further questions.

Katy

[gj124 in reply to ErinSAH]

I agree you do still make improvements years in when you least expect them. I seemed to be on hold with any further improvement but then I had my drop foot corrected. This meant I could now weight bear so I no longer needed a hoist for transfers I could use a Ros return.

[Elenor3]

Hi

I understand a lot of what you say as I have some similar issues, not as challenging as yours. Over two years the worst seems to be improving. Partly I wonder have I just git used to some of the things? I wonder is it better or us it just that it feels so familiar now that I'm not bothered? Then I get a day like yesterday where it all feels worse. But then I wonder if I was just over fatigued and was everything physical bothering me becusse of that? It's hard to know. Either way it's not as bad as it was whatever the reason and that means progress. Keep moving forward. x

[Cornishwaves247 in reply to Elenor3]

Thank you for your reply

[Flumptious]

Hello, Cornishwaves.

I had my TBI in July 2005. I was in hospital for 8 months, and off work for 18 months.

Some of my problems got better, and some are still here. After 6 months, my speech was still appalling, and I had to wear an eye-patch, because I had double vision. That has gone, *mostly* - if I am looking forward, it is fine, but if I rolled my eyes down, I see double again. More importantly, when looking forward, I can see nothing to my right (although if I look over to the right, I can see over there, fine). In the 13 years since the accident, there has been no improvement to that.

But in the early days, my balance was awful, and it is fine now. Five or six months after the accident, I needed a wheelchair. A few years later, I ran the London Marathon (admittedly, slowly, but still, I got round it!). In the first 7 or 8 months, I had no day-to-day memory, but that came back, slowly, and is OK now. It is not as good as it was before my accident, but it doesn't cause me any problems - I make myself notes, to make sure I remember things. I don't think I need them anymore, but I don't quite trust myself, just in case! I am still missing a huge chunk of memory from before the accident, and for 6 months afterwards. That time included me having a second pregnancy, us moving house, and the lovely baby arriving. She is a teenager, now!

To be honest, I think I am still improving - OK, it is very slow, now, but I think it is still happening. So don't give up!

[Cornishwaves247 in reply to Flumptious]

Thank you for sharing your story. You have achieved so much since your accident. I'm constantly told that balance can be re programmed, so here's hoping. I think once this corrects it will have a knock on effect in other area of concern. I can all but hope. 😊 Thank you